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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 29, 2022
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Answer Summary

Members shared mixed experiences with hydroxychloroquine and vision changes, with most reporting annual or biannual eye exams as a standard... Read more

Members shared mixed experiences with hydroxychloroquine and vision changes, with most reporting annual or biannual eye exams as a standard precaution recommended by their rheumatologists. Several members described noticeable vision issues including blurred vision without glasses, eye fatigue and watering by day's end, and difficulty seeing the TV, while one ophthalmologist reassured a member that serious problems are rare in his 30 years of practice. One member shared a devastating outcome where the medication caused severe retinal damage that continued even after stopping, emphasizing the importance of baseline eye exams and immediately reporting any vision changes to medical professionals.

A myRAteam Member

Things went well with the eye doctor (ophthalmologist). He said in his 30 yrs in practice he has only seen one person who had problems with hydroxychloroquine over any extended time taking the drug. I have my baseline and now on the annual recall.

July 2, 2022
A myRAteam Member

Plaquenil (hydrochloriquine) has almost completely destroyed my retinas. I had my annual checkups with my opthamologist and stopped taking it immediately when I noticed changes in my vision. The toxicity stays in your system for years and continues to cause damage even after stopping the drug.

July 19, 2022
A myRAteam Member

I also have been experiencing heat flare up with perspiration. They usually start at the same time every night 9-30pm when I am getting ready for bed. I thought I was suffering a life long term of post menopause hot flushes until I read on here that it is my RA that is the cause. I also have noticed that over the last several years I am having to go to the toilet every 90mins to 2 hrs during the night. Is this also to do with RA ?. I am 71yrs of age.

June 29, 2022
A myRAteam Member

I've been taking it fir almost 2 years, and yes I have. If im not wearing my glasses 24/7 things are blurred and by the end of the day my eyes are very tired and watering.

July 2, 2022
A myRAteam Member

No I have a special test for eyes every six months no problems at all I have been on it for 7 years or so

July 1, 2022

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