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RA And Coping With Work

RA And Coping With Work

For those of us still working with RA, how are you coping?

Myself, I have worked all my life, I am now 61 yrs old and have had RA for the past 16 yrs.
As each year goes by I find that I am more and more tired. Today, I have the day off and I am so tired I really can’t muster the strength to get out of bed and I am dreading going back into work tomorrow.

It seems that if you are sick (through no fault of your own) you have to be practically immobile and at deaths door before help is available… read more

A myRAteam Member said:

To CherryBerry and mcadwell. Talk to your dr first about disability. Call HR. I hired a law firm in Utah to help with my SS disability claim. They did a great job doing everything. It’s a lot of work to do yourself. My claim was approved the first time. I received a call from a man at the SS office who told me that my claim was approved and explained more about it. I had to give him my checking account number. Be cautious about that. I started receiving my benefits soon. I don’t get that much cause I didn’t work many years when my kids were little. Look into it. RA is a debilitating disease as you know. I can’t remember if I got Medicare then. This isn’t charity. You paid into it. I can’t do housework so my housekeeper comes every other week. She takes good care of me.
I wish you well and will send prayers to you. Jan

edited, originally posted 8 days ago
A myRAteam Member said:

Some company's have good insurance plans and disability plans. I am 59 and had to stop work due to the fatigue and joint pain. I hope you can get some help or look into SS disability maybe? I could not see me working to 65 - 67 and then not have much quality of life. I get the rest I need now and my pain levels have really decreased. Best of luck to you but please see what s out there to help replace some income.

posted 16 days ago
A myRAteam Member said:

I feel you. I just started my four-day week 10.5 hour days on Monday for the next 2 months and I dread every second every minute every hour. Yesterday Monday was the longest day. I have my elbow which is locked I'm wearing a brace on that . my fingers with your swollen I have them taped up. my wrist is swollen. mostly on the . right fingers are also not as much as my left. Staff just look at you expecting everything appreciating nothing. I will be 59 I have three more years and 4 months to retirement. I do plan on retiring at 62. But there are days where I just can barely make it to the office and I deal in customer service so I imagine that. Here's wishing you a good today and a better tomorrow for everyone☮❤🙂

posted 8 days ago
A myRAteam Member said:

I feel all yalls pain. I felt great Tuesday, accomplished a lot around the house. I'm paying for it dearly ever since and have work tomorrow. My workweek starts on Fridays. I'm 53, will have both knees replaced the end of July, and I don't believe I'll make it to retirement.

It's comforting to know I'm not alone in that there are so many who feel the same. Gentle hugs all around 🤗

posted 13 days ago
A myRAteam Member said:

I always have to ask myself this question, "What's the alternative?" and it helps me to focus on the situation.

I'm 54, have had RA/fibromyalgia for 20+ years and some days I'm so tired my brain doesn't kick in until bedtime - and those days mean no sleep that night, meaning I get even more tired. Rinse and repeat until my brain decides to stop. Then I sleep too long and my body feels worse for it. Meaning I can't sleep because of the pain. Ad nauseum.

I won't ever be able to retire either because of fthe medical system that's sucked up all extra cash.

My workplace is a non-profit and has several employees with disabilities. I am fortunate enough that they understand medical difficulties and they've gone over and above to help our situations.

I hope the best for you and wish you luck!

posted 16 days ago
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