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RA And Coping With Work

A myRAteam Member asked a question 💭
Queensland

For those of us still working with RA, how are you coping?

Myself, I have worked all my life, I am now 61 yrs old and have had RA for the past 16 yrs.
As each year goes by I find that I am more and more tired. Today, I have the day off and I am so tired I really can’t muster the strength to get out of bed and I am dreading going back into work tomorrow.

It seems that if you are sick (through no fault of your own) you have to be practically immobile and at deaths door before help is available… read more

June 6, 2021
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Answer Summary

Members connected deeply over the question of how to keep working with rheumatoid arthritis, with many sharing the profound exhaustion,... Read more

Members connected deeply over the question of how to keep working with rheumatoid arthritis, with many sharing the profound exhaustion, physical pain, and emotional toll of pushing through demanding jobs while managing a progressive disease. Several members described the difficult but necessary decision to apply for disability benefits, with practical advice including talking to HR first, consulting with doctors about work limitations, hiring disability attorneys to navigate Social Security claims, and recognizing that taking disability is not charity but using benefits they paid into. A recurring theme was the grief of leaving work before planned retirement, the adjustment to a slower pace of life, and the importance of listening to your body when it signals that enough is enough, even when guilt or financial pressure makes that decision feel impossible.

A myRAteam Member

I am 50 and disabled. One thing that happened to me was I became depressed and more isolated with out my work. I am a therapist and the brain fog made it where I couldn’t remember patient info from one week to the next and wasn’t able to document after left and right wrists fusions. I wish I could have worked longer. Proud of you for working as long as you have.

July 18, 2021
A myRAteam Member

To CherryBerry and mcadwell. Talk to your dr first about disability. Call HR. I hired a law firm in Utah to help with my SS disability claim. They did a great job doing everything. It’s a lot of work to do yourself. My claim was approved the first time. I received a call from a man at the SS office who told me that my claim was approved and explained more about it. I had to give him my checking account number. Be cautious about that. I started receiving my benefits soon. I don’t get that much cause I didn’t work many years when my kids were little. Look into it. RA is a debilitating disease as you know. I can’t remember if I got Medicare then. This isn’t charity. You paid into it. I can’t do housework so my housekeeper comes every other week. She takes good care of me.
I wish you well and will send prayers to you. Jan

June 15, 2021 (edited)
A myRAteam Member

Some company's have good insurance plans and disability plans. I am 59 and had to stop work due to the fatigue and joint pain. I hope you can get some help or look into SS disability maybe? I could not see me working to 65 - 67 and then not have much quality of life. I get the rest I need now and my pain levels have really decreased. Best of luck to you but please see what s out there to help replace some income.

June 7, 2021
A myRAteam Member

I have had RA for about 24 years diagnosed at age 26. I had to quit work three years ago at age 27. I guess I knew it was time to quit when I could no longer do my job and was just too sick to work. I had to apply for disability, which brought on a myriad of negative self feelings. However, it took less than a month to get approved so that made me realize I had made the right decision.

August 3, 2021
A myRAteam Member

I always have to ask myself this question, "What's the alternative?" and it helps me to focus on the situation.

I'm 54, have had RA/fibromyalgia for 20+ years and some days I'm so tired my brain doesn't kick in until bedtime - and those days mean no sleep that night, meaning I get even more tired. Rinse and repeat until my brain decides to stop. Then I sleep too long and my body feels worse for it. Meaning I can't sleep because of the pain. Ad nauseum.

I won't ever be able to retire either because of fthe medical system that's sucked up all extra cash.

My workplace is a non-profit and has several employees with disabilities. I am fortunate enough that they understand medical difficulties and they've gone over and above to help our situations.

I hope the best for you and wish you luck!

June 7, 2021

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