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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Methatrexate Use Long Term

A myRAteam Member asked a question 💭
Laporte, IN

Haven't been back to my Rheumatologist since COVID. Took myself off methatrexate as I was having my blood monitored. I fear being on it long term. What have those of you who have been on it experienced?

January 13, 2021
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A myRAteam Member

I was on it for about 20 yrs. Worked well, I had no side affects. Eventually I had to go on something sronger. Tried Humara, then Orencia. Im now on Acterma infusions.

January 22, 2021
A myRAteam Member

I administer a methotrexate injection weekly which means my digestive system doesn't get so upset. I found I couldn't tolerate 20mg but I'm settled now on 10mg. My rheumatologist warned me that it can take years to get the dose right. I'm in the uk so all meds are free. I take 10mg folic acid on the non methotrexate days to protect against the harm methotrexate can do. I have frequent blood tests and at first my white blood cells went down but now after 4 years it's settled down.
Methotrexate is designed to prevent the disease reforming the joints. It doesn't help with fatigue though,; learn to rest when you need to. Just because one day you wake with energy don't go mad and do masses of tasks because you still need to relax every so often to let your body catch up . My gp told me the other day that an RA body is never at complete rest because it spends so much energy fighting disease, hence the anaemia.
Be kind d to yourself is the best advice I've been given.

January 25, 2021
A myRAteam Member

This is such helpful advice. Thank you!

March 9, 2021
A myRAteam Member

I’ve been on it nearly 40 years. No major issues, just have blood tests every 3 months. It does make me anemic but rather that then pain.

January 23, 2021
A myRAteam Member

Thanks Nancy! I guess I have to evaluate my level discomfort when not on it versus being on it. Not seeing my doc through all this makes me leery of taking it again for the present time.

January 22, 2021

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