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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi, I'm wondering what people are using for pain control and how the side effects are. Any info is greatly appreciated.

A myRAteam Member asked a question 💭
Canada, KY

I'm new here. I've had chronic pain for almost 20 years and was on a lot of pain meds for years. With the help of cannabis I've managed to get off a lot of pain meds but after being on fentanyl for over 15 years it's not working anymore and the long term side effects are getting worse. Fentanyl is the one drug I couldn't get off of. I've been experimenting and researching a lot about cannabis and related products. I've found edibles and THC/CBD oil work wonderfully for the pain without the side… read more

December 21, 2020
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Answer Summary

Members rallied around someone seeking pain control alternatives after 15 years on fentanyl, with the overwhelming consensus being that... Read more

Members rallied around someone seeking pain control alternatives after 15 years on fentanyl, with the overwhelming consensus being that finding a rheumatologist is essential, as they can connect patients to financial assistance programs for infusions and other treatments that primary care doctors may not offer. Several members shared their own pain management strategies, including Aleve, medical marijuana (noting it helps despite side effects like dry mouth and fatigue, though insurance won't cover it), kratom capsules available at health food stores, and non-pharmaceutical options like compression gloves, ice, heat, and topical roll-ons. A recurring theme was the importance of personalized guidance from specialists, whether for cannabis therapy or disease-modifying treatments, along with warm encouragement, prayers, and reassurance that everyone's pain journey is different and requires patience and self-advocacy.

A myRAteam Member

I'd call around to local health food stores

December 23, 2020
A myRAteam Member

I use medical marijuana. Insurance companies will not pay fot it (or doctor visits) until the state you are in mandates it or the federal government makes it legal. It is expensive, but it does help. I do get some side effects though like dry mouth, thick saliva, heart palpitations, and tiredness. It doesn't last too long though. I actually do better with opiods. There is such a stigma with it. I'm over it now. If it works, it works! I try all kinds of other stuff for pain including lotions, roll ons, ice, heat, compression gloves, rest, braces. I could go on and on. We all react differently to pain. I hope you find something that works for you! A rheumatologist will help you to navigate what you need.

December 25, 2020 (edited)
A myRAteam Member

I heard kratom, could be useful. I haven't tried it. Its not illegal and some shops sell capsules of it

December 23, 2020
A myRAteam Member

You need to find an RA doctor who will work with you. They have access to programs that can pay for infusions if your on a low income. Good luck and happy holidays.

December 21, 2020
A myRAteam Member

I use Aleve... it helps me

December 21, 2020
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