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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Remicade Infusions and Headache

A myRAteam Member asked a question 💭
Sacramento, CA

Has anyone experienced severe headache using Remicade?

August 18, 2020
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Answer Summary

Members shared their experiences with severe headaches during Remicade infusions for psoriatic arthritis, with several confirming they... Read more

Members shared their experiences with severe headaches during Remicade infusions for psoriatic arthritis, with several confirming they experienced headaches, sweating, and muscle pain while on the medication. A nurse from an inflammatory bowel disease clinic recommended taking Tylenol every four hours for at least 24 hours before and after infusions, while also suggesting checking blood pressure during treatment and notifying the infusion center about any severe headaches so the physician can evaluate whether to continue. The conversation evolved into a broader support exchange about living with seronegative PsA and RA, with members discussing failed biologics, permanent joint damage, family history, and the emotional toll of chronic pain, ultimately encouraging each other to stay aggressive with treatment and remember that despite the challenges, it could always be worse.

A myRAteam Member

I was on Remicade and I had headaches for a few months, usually right after treatments but it got better.

August 31, 2020
myRAteam

Remicade (Infliximab) infusions can cause headaches as a common side effect. If you experience severe or persistent headaches, it's important to inform your doctor. Here are some key points:

- Common Side Effects: Headache, infections, infusion-related reactions, abdominal pain
- Serious Side Effects: Severe infections, Show Full Answer

Remicade (Infliximab) infusions can cause headaches as a common side effect. If you experience severe or persistent headaches, it's important to inform your doctor. Here are some key points:

- Common Side Effects: Headache, infections, infusion-related reactions, abdominal pain.
- Serious Side Effects: Severe infections, increased risk for lymphoma, liver damage, heart failure, and nerve damage.

For more details, you can visit the Remicade website: [Remicade — Janssen](https://www.remicade.com/).

July 28, 2024
A myRAteam Member

@A myRAteam Member yes I was diagnosed with degenerative disc disease in my 20s. I had a microdiscectomy at L5S1 when I was 23. Now I have an implanted spinal cord stimulator which changed my life but now the PsA is interrupting this therapy. My grandmother, more my mom, died from pancreatic cancer too. Such a horrible way to go. Miss her dearly.

We have much in common. Take care of yourself. Wishing you a good afternoon/evening and restful night tonight!

August 20, 2020
A myRAteam Member

@A myRAteam Member
Let your infusion center know about these headaches
They'll let the physician be aware of this before your next infusion
They might want to try one more infusion to see if the headache response happens again
But ultimately it's your decision
You have to weigh the pros and cons of your response to Remicade.
If suffering the headaches is too much....stop the infusion
I did the same with simponi...had good response but side effects too much to deal with
I have both RA and PsA

August 20, 2020
A myRAteam Member

I'll keep you in my prayers take care. Love and hugs

August 18, 2020

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