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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Remicade Infusions And Headache

Remicade Infusions And Headache

Has anyone experienced severe headache using Remicade?

A myRAteam Member said:

I was on Remicade and I had headaches for a few months, usually right after treatments but it got better.

posted about 1 year ago
A myRAteam Member said:

@A myRAteam Member yes I was diagnosed with degenerative disc disease in my 20s. I had a microdiscectomy at L5S1 when I was 23. Now I have an implanted spinal cord stimulator which changed my life but now the PsA is interrupting this therapy. My grandmother, more my mom, died from pancreatic cancer too. Such a horrible way to go. Miss her dearly.

We have much in common. Take care of yourself. Wishing you a good afternoon/evening and restful night tonight!

posted about 1 year ago
A myRAteam Member said:

@A myRAteam Member
Let your infusion center know about these headaches
They'll let the physician be aware of this before your next infusion
They might want to try one more infusion to see if the headache response happens again
But ultimately it's your decision
You have to weigh the pros and cons of your response to Remicade.
If suffering the headaches is too much....stop the infusion
I did the same with simponi...had good response but side effects too much to deal with
I have both RA and PsA

posted about 1 year ago
A myRAteam Member said:

I'll keep you in my prayers take care. Love and hugs

posted about 1 year ago
A myRAteam Member said:

Hi, I was on Remecade infusions for about one year. It was not much help for me if any help at all. I did have headache yes. Sweating, muscle, bone, and joint pain. I have a great history of migraine & cluster migraine. I'm sorry that you are having a rough go of it right now. Hope things will get better for you.

posted about 1 year ago
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