I was diagnosed with seronegative ra but lately the last four months my joints especially in my thumbs and knees are weak and swelling wont go down.
Were you tested for more than rhematoid factor and the anti ccp? I was pretty much negative on everything then i had a very sensitive test done called “avise” and i tested positive for one of the more rare RA antibodies, that tests positive in nothing other than RA so i was diagnosed as seropositive. I find that most people do not have this test though so they either never know (took doctors 7 years before they did this test on me) or are diagnosed with seronegative. So im curious as to if you have had this test might be worth looking into if you havent
I had a positive ANA (antinuclear antibodies) and was worked up for Lupus by a Rheumatologist and a Neurologist for years before anyone realized I had RA. It was ultimately my deformities that convinced my doctor to do an RA blood test which was negative. That’s when they gave me the diagnosis of seronegative RA. Unfortunately by then I was Hep B and Hep C positive plus I was exposed to TB as an infant so I wasn’t and I’m still not able to take biologics. So the symptomatic relief measures like ice packs, NSAIDs and Diclofenac cream are my life savers!! There are many days when I have to force myself to get out and go for a walk with my dog to get sunlight and exercise because I KNOW how vital it is to keep moving even when it hurts and I’m exhausted!
@A myRAteam Member
Good points. Thank you for the useful information
I get that regardless of seronegative or seropositive its treated the same way HOWEVER I have known people to be seronegative and later on down the road the drs have said its not RA and they still dont know what it is. I know some people have x rays and stuff to confirm but thats the main reason i said that. Since she did ask if it could EVER turn into positive and it “might could” if she was tested with that test. Just saying. Regardless if that changes the treatment or not
Thank you SamH good advice.