I've failed Enbrel, Remicade, and Xeljanz. Now I'm awaiting approval for Orencia. I'm hurting a lot. My right hip has hurt for 8 months and many of my larger joints hurt a lot. I'm supposed to take prednisone, which works, of course, but I cannot sleep on it and I hate the weight gain... Duh. Narcotics make me sick, so I don't want them, but I wonder if I should see a pain doctor. In a weird way, I feel like im betraying my rheumatologist if I do, though. Thoughts? Experiences? When is it time… read more
I tried Enbrel, Humira, and Xeljanz neither worked for me .... my rhemy put me on Cimzia bi-wkly (200mg) injections delivered to my home. I inject the medicine under the skin every two weeks ... it taken some time for me to do this myself .... hate needles ... had my 14 year old daughter inject me in the stomach. I don't have ALL that pain nor stiffness anymore. My insurance wouldn;t pay for it so I found a company in Texas that pays 100% for this (CIMZIA) medicine , no co- pays and they send the entire perscription (3 months) at one time. Here's the number (Phone number can only be seen by the question and answer creators) the name: Perscription Life Line or you can go online perscriptionlifeline.com ..... hope this helps you or whomever is reading. Take care
Have you tried 𝐂𝐁𝐃 oil? It has made a huge difference in my pain level. I use it orally and topical as needed. Give it a try. I was hurting so bad in my hands and feet I was willing to try smoking pot. Lol
I would highly recommend seeing a pain specialist. I have found that my RA treatments work to help remission of the disease but my pain doctor has been the one to help with the pain. I have knee injections, take lyrica and I can sleep with a sleep aid. I find that the RA doctors are less helpful with pain management.
Humira. Enbrel, Cimzia, and Orencia were not the answer for me either. Started having tremors on Orencia, which did not subside after stopping the shots. Finally, after being on Oxycontin, and Dilaudid for pain control, which led to more stomach issues, I was started on Rituxan I.V. infusions. Been mostly pain-free since I started the Rituxan, last October. These infusions have been very helpful in controlling pain. Nothing seems to help with fatigue, tremors, etc. But my life is so much better. Yes, I still have aches, and the Rituxan does not slow the progression of the disease. But, before Rituxan, the pain was horrid. I still take 6 mg of Methylprednisolone, but tapering down slowly, with hopes to be off of steroids in a year. Don't give up. There is some med out there for you. It took me six years to find a med that actually really helps.
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