I didn’t even know I had joints in my larynx until this flare! For me it’s like a big lump in my throat and a sore throat which isn’t so bad but then sometimes I can’t breathe well because of it and that scares me. I’ve been on 20 mg of prednisone since Monday to control this flare, and it’s starting to work in my other joints but my throat isn’t getting any better. Has this happened to anyone else? Is there anything that has helped you with this symptom? Esp the breathing… read more
Hi. Do either of you sleep with your mouth open or know of, or been told you snore? Seriously, I did (still do occasionally) as my husband reminds me. Have had Similar problems since I was first diagnosed at 12 with JRA. I had sleep apnea - caused by a problem in my throat near larynx. Yeah, I sleep with a mask and machine but it keeps my mouth and throat feeling better, marriage better (lol), and I keep breathing. Have better energy and my oxygen level has gone from around 84 to 98. I stopped breathing 110 times a night in my sleep. Now its down to 2 to 4. Cant hurt to get yourself checked.
Welcome to the site. Your problem could possibly be stress related but if I were you I would certainly get it checked out. Sounds nasty. Vera
Did you find any answers? I'm currently experiencing this exsct same thing with my flare.
Sorry for the belated update! Am having this issue again and it reminded me of this post. Thanks for all your responses! 💕
I asked my fiancee and he has not noticed any snoring/sleep apnea breathing when I sleep, although my dad has sleep apnea so I really should get myself checked out for that, thanks Myra!
Injacobs, this problem resolved for me when i increased my dose of prednisone (during that flare, I had to go up to 60 mg). And it turns out that for me, there were two separate problems: laryngeal involvement, which was causing the lump and sore throat, and costrochondritis, which was causing the pain when I breathed. It’s definitely something that feels scary so definitely bring it up with your dr if you haven’t already. I didn’t find anything that specifically helped with this issue (well, maybe coconut popsicles helped with the sore throat haha), what resolved it in the end was getting the flare under control with the right dose of prednisone. Hope you got this symptom under control! It is a particularly distressing one.