Best Way To Explain RA To Family Members?
I was diagnosed with Seronegative RA In November 2018. I just turned 29 in February. Positive ANA and have been on Plaquenil, Prednisone, and now highest dose of Methotrexate. Nothing has seemed to help and I am getting progressively worse. All of my bloodwork comes back negative for RF, CCP. My Mother has had RA for the last 27 years, and she was Seronegative as well early on and is now Seropositive. I have her support in this because she knows firsthand the difficulties. My Husband seems to… read more
At 76 years I have had RA for over 22 years now. Max. methotrexate and many pain killers. My get up an go done got up an gone many years ago. I do find that cbd cream helps and so does cbd oil. I've never heard it explained like having broken fingers but some days this is so. I just hope and pray that my offspring can avoid this somehow.
I too am young with Seronegative RA age 33 just got diagnosed begin of September 2019. My Rheumatologist immediately put me on high dosage of Methotrexate, I definitely feel better, but was still low on energy so he ended up prescribing me Modafilin. I have good and bad days for energy. I hope you start feeling better. Also food has a major impact on my joints. It sucks but oh well.
I'm another RA pt w/significant spinal arthritis. I'm a PA that became disabled in 2006, d/t my disease. I've learned so much more as a pt in re to the many additional organ systems affected by RA, than I did in school.
I am 60 but at 45 when my sxs hit I dealt w/the sweating, joints/muscles just hurting & often burning. I dreaded waking up b/c my sxs were in my face every am & I was trying to raise my last 2 kiddos. Those days sucked.
Build a support system around you, keep reading all you can about RA & other similar dxs. If you aren't really content w/your provider then keep looking for the one that will make you feel like you're getting somewhere w/treatment. It will take a while for you to figure out what meds/supplements help vs hinder your progress.
Organ systems to not ignore are your adrenal glands & thyroid gland, responsible for many of your hormones producted. Ask your doc to check your estrogens, progesterone, testosterone, Vit D level, and ask for a full thyroid profile. I'm assuming your doc has already ruled out anemia as cause of fatigue.
Low levels of testosterone can really cause fatigue and delayed muscle recovery after exercise. It affects your drive to enjoy life too. Low levels of estrogens/progesterone can contribute to sweats, hot flashes, mood shifts, wt gain, etc..(ie nothing good!)
I tried oral HRT but nothing had worked for me like Hormone Pellet Therapy. Unfortunately Ins won't pay for pellets, go figure!
Anyway, hope something here helps. God bless you in your journey:)
Marcia.
@A myRAteam Member.I too am battling with my eyes and always feel that there is something in them. I now have glaucoma so I have to go regularly for check ups.. every 3 months as they are deteriorating. He told me that the something in my eye is caused by a condition called Blepharitis and told me to clean along the lid, top and bottom very morning and evening with a pad of warm water. Since doing this, they seem to be watering less and that irritating "thing " in my eye is not happening quite so often. Maybe ask you're doc about it.
Tough disease for people to find understand. I look 10 years younger than I am and act it. So when I'm in a flare or can't lift that bale, or...... They don't get it. Sometimes I feel like wearing a sign.
I Have A Silly Question. I Love Our Little Group Here So Much And It Helps So Much. Are There Resources And Support For Spouses. ?
Please Create A Group For Family And Friends Living With RA. There Is A Huge Misunderstanding Between RA And Arthritis
I Believe There Is A Definite Genetic Link To Developing RA. Do Any Members Of Your Family Have RA Or An Autoimmune Disorder Like Lupus?
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