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A myRAteam Member asked a question 💭
Durban, ZA

I was diagnosed with RA in 2004. Been taking all the prescribed medication since and having a good quality of life.

Then in 2015 had a bone density test that showed T-scores between -2.7 and -4.4 caused by the Methotrexate, resulting in me being diagnosed with Osteoporosis.(A T-score of -1.0 or above is normal bone density. Examples are 0.9, 0 and -0.9). To stabilize this I was put onto Calcium Plus and Boniva to help strengthen the bones.

One month ago I had a slight chest and jaw pain… read more

November 28, 2018
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Answer Summary

Members responded with empathy and solidarity to someone sharing their experience with quadruple bypass surgery after RA-related arterial... Read more

Members responded with empathy and solidarity to someone sharing their experience with quadruple bypass surgery after RA-related arterial blockages, with many relating to the frightening reality of how RA affects not just joints but the heart and lungs as well. Several members shared personal experiences with irregular heartbeats, A-fib, hypertension, shortness of breath, and lung involvement, while others discussed the difficult balance between taking medications like methotrexate (which research suggests may actually help reduce cardiovascular risk from RA) and managing their side effects. A recurring theme was the complex trade-off of treating RA aggressively to prevent organ damage while navigating fears about medication, with members encouraging each other to seek second opinions, stay informed, and advocate for heart-healthy lifestyle changes even when doctors offer limited preventive options.

A myRAteam Member

CryptoChick, you should and other RA patients should be aware of the following: Search Results Featured snippet from the web site https://www.ncbi.nlm.nih.gov/pmc/articles/PMC34... "Rheumatoid arthritis (RA) is associated with an increased risk of premature mortality, predominantly due to increased cardiovascular disease (CVD). ... With earlier treatment of RA and earlier use of methotrexate it is possible that we may have the capability to radically change patients' long-term CVD risk."
So Methotrexate (MTX) treatment can help you //avoid// CVD damage... MTX does NOT cause the CVD, RA does. Of course all medications can cause side effects, some deadly. It is always a trade-off. IMHO, (and that of experts) NOT treating RA is worse than many treatments including MTX and MTX is still considered a gold standard in the treatment of RA. Just sayin'.

November 30, 2018
A myRAteam Member

Further question that I asked my Cardiologist yesterday: What can one do to prevent / reduce / slow down the process of calcification so as not have to go through the same process again of having to repeat heart surgery in years to come? His answer was "nothing". As surgery has been done now, for future they could maybe just insert Stents.

I am an engineer by profession, so look at logical solutions for problems. My thinking therefore goes along the lines - what should I do more of or less of? What medication should I take more of or less of? What "Other" should I take / do more of or less of to maintain my body and reduce risk of having heart issues in future. I know each persons body is unique, but there should be certain principles that one could call generic and also certain principles will be more person specific.

What are your thoughts?

Many thanks

November 29, 2018
A myRAteam Member

To my understanding from discussing with the Cardiologist, Rheumatologist and Thoracic surgeon, the RA causes excess calcium in the body which is why the joints can swell and this excess calcium was the cause of the calcification of the heart arteries. The side effects of the Methotrexate causes degeneration of bone density resulting in Osteoporosis as I mentioned in my original article.

November 29, 2018
A myRAteam Member

Just so you know RA can affect your heart. It can also affect your lungs. It affected my lungs almost 4 years ago. I have shortness of breath. I have never smoked. Are you sure it was the drugs that effected your heart or the RA itself. Any area we have connective tissue can be affected by RA.

November 29, 2018
A myRAteam Member

I've been having trouble breathing for awhile. I can be just sitting down and I started having shortness of breath. So yesterday I was told that the test that I had shows I have asthma. It's so much that we go through. I was first diagnosed with Shogren 1st primary, then fibromyalgia, then RA theres no cure for either of these and they all messed with your lungs, and heart.

December 4, 2018

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