Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I am mostly freezing cold, but then all of a sudden, out of nowhere I’m hit with feeling of being so hot internally for a few minutes, then back to cold. But of course I also have the night sweats. And continual pain. I have RA, fibromyalgia and osteoarthritis. Can’t fiugure out what’s causing it.

October 5, 2018
 · 
Reactions

Answer Summary

Members connected deeply over experiencing sudden temperature swings, with most describing feeling freezing cold most of the time punctuated... Read more

Members connected deeply over experiencing sudden temperature swings, with most describing feeling freezing cold most of the time punctuated by intense internal heat and night sweats, often soaking through bedding and pajamas. Several members shared that thyroid tests came back normal, and many suspected the temperature dysregulation was linked to RA itself, fibromyalgia, or medications like methotrexate and Plaquenil, though some noted the symptoms started before any medication began. A recurring theme was the frustration of doctors dismissing these concerns or offering unhelpful advice like drinking more water, alongside practical coping strategies like layering clothing, using heated blankets, taking black cohosh or maca root supplements, and simply accepting that the body's thermostat feels permanently broken.

A myRAteam Member

I do it horribly when my vitamin D bottoms out. Along with same symptoms as thyroid problems. It's a total mess and yes it crazy. Endocrine Dr .times 2 just says yes you need meds but just not yet. Pooye on them all.Now I have nodes on my thyroid , inflammation in my lungs. Hoarse and raw feeling from my throat to sternum.... Being all this said there is another autoimmune suppression d's. Heritetary called Granumatous....RA can flare this. They don't ever say much about this one. I just tested positive. Hope you get better .

September 23, 2019
A myRAteam Member

I didn't have hot flashes until I started taking plaquenil!!!

July 18, 2019
A myRAteam Member

Without knowing your age (it's possible it's normal & hormone related i.e. menopause) but Maca root was recommended to me with very high success rate in controlling up and down temperature changes. I have not personally tried it but wanted to offer a suggestion! :)

October 8, 2018
A myRAteam Member

I get really cold almost every night and I have the chills. I cover up and am still cold. I often fall asleep and wake up feeling normal again. Also, almost every night around 2 or 3 in the morning, I wake up really hot inside. I will not feel hot to the touch, but inside I'm HOT and my head is sweating. I do wear a knit hat because it helps the cold issue. I talked to my Nurse Practitioner about this and she said to make sure I'm drinking enough water. I think that means that she does not have any idea of what is going on with me. I think my inner thermostat is broken. I had a doctor tell me that it was part of neuropathy. He said he has had patients that are cold on one side and hot on the other side of their body at the same time. In short.............there is no answer.

December 21, 2020
A myRAteam Member

Nichole. I seem to have your problem, cold and hot at different times.

December 15, 2020

Related Questions

View All
A myRAteam Member asked a question 💭
Cobble Hill, British Columbia, Canada