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Mine is cyclical and usually happens before and after flares, but it can be up to 10lbs at a time. It is really visible in my arms, feet, middle of my thighs to my calves. My mom saw me the other day extremely swollen and said that I looked like a linebacker! My PCP said that my electrolytes could be off so she suggested drinking some gatorade during the day with my regular water intake. Although helping slightly, my arms and legs are still incredibly tight, the skin looks tight, you know? I… read more
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Members connected over the uncomfortable experience of water retention and swelling in the arms, legs, hands, and feet, with many sharing that... Read more
I did have those issues until I was diagnosed 2 yrs ago. Predisone made it go away immediately. I've had a few other episodes that required Predisone again. I am now on a time released Predisone 5mg. Its high dollar too! The name is Rayos and retails at $9400!
Have you been peeing enough to equal out how much your drinking? Now I will swear to you about this.... If you drink too much water, it can and will flush out your Potassium level. And this directly affects the heart.
Do you have blood pressure issues?
I would ask my doctor for some Lasix which will make you pee every 5 minutes but it will get rid of fluid.
Don't drink Gatorade that's the worse drink for RA people. It did the same thing to me. I didn't know until I stop drinking Gatorade.
@A myRAteam Member UGhhh sucks! I def have to talk to my Dr. about vasculitis...Because I, like you, seem to get somewhat better with steroids--I just don't want to take it so often, you know?? I'll check into this, too and see how it goes! Thanks!
@A myRAteam Member Thank you for commenting! I am pretty sure my rheumatologist has already checked for that, but there is no problem with checking again because it has been awhile. Thanks!
It may be a good idea to see if your specialist has considered scleroderma as a viable option. Tight skin is one of many symptoms though, so remember it could be totally unrelated.
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