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A myRAteam Member asked a question 💭
Denver, CO

I asked to have a scan done because of steroids and being on for 6 mths, and my mom had it. I have osteoporosis but it is highest in femor neck, I am afraid this is due to the steroids but I do not want to take the medicines so I am looking into exercise and speak with a naturopathic doctor see if any other options

July 8, 2018
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Answer Summary

Members shared their experiences managing osteoporosis alongside rheumatoid arthritis, with many attributing bone loss to long-term steroid... Read more

Members shared their experiences managing osteoporosis alongside rheumatoid arthritis, with many attributing bone loss to long-term steroid use, hysterectomies, or both, and treatments discussed included Prolia shots, Reclast infusions, Fosamax, and Boniva, though several members expressed concerns about side effects like jaw necrosis and limited effectiveness. Several members offered alternative or complementary approaches, including weight-bearing exercises like squats, MCHC calcium with vitamin K, and consulting naturopathic doctors, while others emphasized the importance of regular bone density testing to monitor progress. A recurring theme was the emotional burden of adding yet another medication to an already overwhelming regimen, met with encouragement to stay positive, weigh personal risks and benefits carefully, and remember that things could always be worse.

A myRAteam Member

Yes, I have severe osteoporosis. I have a Reclast Infusion once a year. It’s a 15 minute Infusion. No big deal.

July 8, 2018
A myRAteam Member

I had thinking of my left hip. I also had a complete hysterectomy when I was 36. I had a bone density test when I was first diagnosed and was put on meds. I just had another density test and they said it looked good. But told me I have osteoarthritis in my hip

August 2, 2018
A myRAteam Member

I just found out but thats what I have started is squats for one as its my hip thats the highest at 3. Not sure what that means, but I think on the dexa 2.5 and over is osteoporosis. Yep, I am going to try not to take that boniva and other because alot of reviews say its maybe 30% effective then all the horrible side effects. What we have to take for Ra is bad enough! Be careful with the steroids! He gave me 3 shots high dose within 6 mths. and I think that is why it is effecting my hip as steroids tend to go there. Hang in there!

July 8, 2018
A myRAteam Member

I havent' decided if I am going to take medicine or not yet. I hate the meds for RA without all the other omg, this stinks for sure. I am so against taking any of the drugs for anything, Maybe I will for a year or so, but the necrosis in the jaw and still can have fractures makes me not want to at all. Thanks everyone for the feed back

July 8, 2018
A myRAteam Member

I have severe osteoporosis. I take Prolia shots. Been on steroids for several years. Hips & back are in bad condition.

July 8, 2018

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