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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Deal With

How Do You Deal With

I was just wondering how everyone if it happens to them deals with people who give advice for your Ra such as change your diet exercise yadda yadda also those people who say well you dont look like theres anything wrong with you,,, It gets very furstating dealing with people who just dont get it... dealing with this is hard enough and to have to explain it over and over again to people is grrr annoying.. or is it just me.. kinda need some inspiring storys on how you deal with people who just… read more

A myRAteam Member said:

For those who give advice just say thanks with a fake smile and change the subject ASAP! For those who say you don’t look like there is anything wrong with you that’s so rude! Sometimes I explain that the pain is like having a sprained wrist or ankle... but mostly I prefer not to tell people or talk about it. Much easier. Good luck..

posted over 2 years ago
A myRAteam Member said:

I have and worse because it can cause vertigo. Believe it or not I have been dianosed with PET. Petuous estacian tube disorder. It keeps your inner ear from adjusting to changes in air pressure. All sound now sounds muffled as if I had earplugs in. Very annoying.

posted over 2 years ago
A myRAteam Member said:

I carry a picture on my phone of an xray on my phoneof my mangled foot and a picture of it after surgery. Yes it is a little startling but graphic. But I only do it once and that is the last time wonders if I have RA. Some people are just asking to be polite and I just say ," Dealing with it" and if they are interested in RA I tell them because I am spreading awareness.
The truth is this is me now. I can't hide it . Like a zit on my nose , there is no way to cover it up. I am s6-4 and 255. I gave up trying to hide in the back ground. Because of RA ,I have been left behind by friends when I couldn't keep up, or cancelled going because of RA.
That is why I like this site. This is me. No need to explain.

posted over 2 years ago
A myRAteam Member said:

Always just nod my head say thank you and roll on. Then feel sorry for their lack of knowledge. They think they are trying to help. Sighs.
There are dozens of RA medications on the market with new ones coming all the time. Good luck and God bless.

posted over 2 years ago
A myRAteam Member said:

Are you on @Plaquenil? It can cause Tinnitus and ear problems ... ask your doc . I know the feeling about the shock of being diagnosed I was 16 when I was diagnosed and played wvery sport possible. it changed my whole life. Hard to accept but what can you do.. if you get the right mediation you will be able to control it and live a good and full life. Sorry to hear about the pain, doesn’t sound right. You should have manageable to little pain with the meds. What about an anti inflammatory like Celebrex and or cortisone to help till you get into a proper disease modifying medication? Re the insurance it is well worth to pay a few hundred dollars monthly and be properly treated and live a good of life. Your health is no 1!! Good luck

edited, originally posted over 2 years ago
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