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A myRAteam Member asked a question 💭
Coraopolis, PA
March 23, 2018
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Answer Summary

Members shared varied experiences with pain medication for rheumatoid arthritis, with several relying on opioids like oxycodone or Norco to... Read more

Members shared varied experiences with pain medication for rheumatoid arthritis, with several relying on opioids like oxycodone or Norco to stay functional, while others described being cut off or denied pain management due to concerns about opioid prescribing, creating frustration for those who feel they should not have to suffer unnecessarily. Many members emphasized practical approaches including preemptive pain management before activity, combining medications like Aleve with lidocaine patches and Doxepin for nerve pain, and supplementing pharmaceutical treatment with massage, water therapy, and emerging interest in cannabidiol products. A recurring theme was the tension between needing effective pain relief to maintain quality of life and navigating doctors who are increasingly reluctant to prescribe opioids, leaving some members caught between unmanaged pain and medical gatekeeping.

A myRAteam Member

I’ve been on OxyContin for 20+ years, for joint replacement pains. It helps somewhat. I’ve been to a Pain Management doctor twice and that is what he came up with. Yet the first time he gave another option; low dose morphine, but I chose the former. This last time (a month ago/20 years after the first visit) he recommended Cannabidiol products. Maybe later.

March 27, 2018
A myRAteam Member

@JudylorioTrimmer I can't take any pain meds. Long story..My first RA doctor kept me on Naproxen too long 1000mg a day and I had to have a craniotomy to release the bleed. I think the doctors are all cutting down on pain meds because of all of the overdoses. I don't think that people with RA should suffer without pain meds if they can take them. It's not like you take a mouthful at a time you use them to manage the pain. How would they like to be in pain all of the time. Hope you can work something out. Hugs.

March 23, 2018
A myRAteam Member

Yes. Before my RA diagnosis Drs had me taking high doses of Lyrica, Cymbalta, and wanted me to switch to Savella but after a year and a half those did nothing for my pain. Took five years for my diagnosis and I’m just now taking Plaquenil and Methotrexate; i do see my pain management doctor for 15mg Oxycodone as well as steroids for very bad flares—without I wouldn’t be able to function at all and I have no issue with taking any of my meds. I have a painful autoimmune disease, I’m not going to suffer, no one should. I also get massage therapy and water therapy as well.

March 24, 2018
A myRAteam Member

I have used it for 15 years with no problems and no addiction.

March 23, 2018
A myRAteam Member

I was taking ultram but no more. It's an opioid. But I take 2 Aleve plus lidocaine pain patches plus Doxepin. The Doxepin helps with nerve pain and depression. I take 100 mg of Doxepin. It goes up to 300mg. But 100 works so don't want more unless 100 doesn't work. So far it does. I walk alot unless I'm in pain that day. Hope this helps. God bless, Meka

March 23, 2018

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