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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question 💭
Old Orchard Beach, ME

My big toe is not red or hot to touch. Its alittle painful with walking but severe pain is when it touches anything. Sleeping at night i cant let sheet or blanket touch the joint esp the inner side. Been told by ortho i need toe fused because of deformity but its been mainly the larger joint. This joint pain is new.

March 15, 2018
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Answer Summary

Members shared widespread experiences with severe big toe pain that's tender to touch but not always visibly inflamed, with many initially... Read more

Members shared widespread experiences with severe big toe pain that's tender to touch but not always visibly inflamed, with many initially suspecting gout but finding negative test results and ultimately learning their pain stemmed from joint damage, cartilage deterioration, or rheumatoid arthritis erosion. Several members described practical relief strategies including toe fusion surgery (which many found highly effective despite recovery time), steroid injections, medications like colcrys and allopurinol, dietary changes to reduce acidity, cherry juice for gout management, and creative sleeping arrangements like wearing leggings or using loose blankets to avoid sheet contact. A recurring theme was the debilitating nature of foot pain and how it affects every aspect of daily life, with members emphasizing the importance of advocating for proper testing, seeking second opinions when doctors dismiss concerns, and finding empathy in a community that truly understands that without functioning feet, independence becomes nearly impossible.

A myRAteam Member

Hi, Everyone! Yes - I have had both big toes fused and all of my small toes have been 'pinned,' (after their respective 'knuckles' have been removed). Having your Big Toe fused is a great idea. It stops pain completely as the physician will also straighten your toe(s). Unfortunately, it will take several weeks to recuperate, but, in the end - you'll feel remarkably better and you can focus on the next joint replacement! Hang in there!

April 4, 2018
A myRAteam Member

Best Wishes everyone. I have such sever Knee ache, it's so depressing. Walking is a mission, driving is a mission. I tried a paste of garlic and ginger mixed with course salt (read on facebook for joint pain). Day one was wonderful. Day two was disastorus I had second degree burns on my knee.
The burns have healed, the pain hasn't gone away and I find that it goes all the way down my leg to my small toe.
Exercise they say. So I am trying the HasFit exercise programme for seniors and people with mobility issues. You can do it seated. It's ok at least gets one moving.
Take care everyone.

August 12, 2020
A myRAteam Member

Yes and where the thumb meets the hands is very painful too

December 5, 2018
A myRAteam Member

I had the joint replaced 28 years ago and it was great til recently when they had to take it out and fuse the toe. 28 years is pretty good, though!😁

July 14, 2018
A myRAteam Member

Not gout doc said just damage of joint. As joint damage progresses it can cause severe pain. Toe starting to feel a lil better.

April 3, 2018

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