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A myRAteam Member asked a question 💭
Pueblo, CO

I’m back on Actemra after off it for 6 weeks for back surgery. My mouth is very sore again. Tried a 4 month period without any biologic and still had the tongue sores. Anyone else experience this? Thanks in advance.

February 27, 2018
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A myRAteam Member

Daktaren oral gel and mycostatin oral drops help

March 2, 2018
A myRAteam Member

I also experience mouth ulcers and painfull raw tounge, candida at times

March 2, 2018
A myRAteam Member

also, fyi- i frequently get the thrush- candida- in my mouth when i get frequent antibiotics and high dose steroids. my mouth and throat get so very sore and extremely sensitive, can't taste when i have the thrush. our rheumatologist gives me diflucan for 7 days for this. just a thought.

March 1, 2018
A myRAteam Member

hi sherry,
I didn't have the mouth sores, but I sure got the terrible GI stuff with the actemera. I have IBD to begin with, and the actemera sent me to the hospital x 2 by ambulance! might you ask our rheumatologist about something like maybe some stanford mouth wash? ps- i am back on enbrel. dosen't help as much, but the actemera did a number on me also.

March 1, 2018

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A myRAteam Member asked a question 💭
Pueblo, CO

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