Do you have side effects from that long on prednisone... I am going on 3 years ??? ??
By the way I am on Actemra infusions monthly too.!if you read my story and comments you can catch up re that too!!
This should be monitored very slowly and carefully by your Rheumy!
I am presently beginning a Prednisone taper after taking large dose to never less than 5mg over 15 years. I went into Adrenal Crisis 12/14 and in hospital 7 days. Very difficult time. My dr did labs before we started taper and found my adrenal gland is "blunted" meaning slow to produce Cortisol.
I will decrease my Prednisone by 1 mg each month with labs to continue checking Adrenal function. As we get lower, than the doses will be smaller. Could take 6 to 8 months.
The first week after taper began, I developed severe pain and difficulty walking, sitting and using my hands that lasted 8 days and than gone as quick as it started. My Rheumy had forewarned me but still caught me off guard.
Not trying to scare you but want you to know it is important to be monitored carefully and closely!!!! Contact me personally if you have any further (Email address can only be seen by the question and answer creators)!!