Hi all! I am 22 and I've had RA for a year. I must say- it hasn't disrupted my life too much until my last rheum visit a month ago. My inflammation markers were down but the arthritis has traveled to my hips, so my rheum wanted to up my mtx dose and also add another DMARD. I tried sulfasalazine but got so sick on it. After 10 days, I stopped it, but it feels like my body has been in such a dip since then. I am suffering from debilitating fatigue- I can sleep for 8 hours and then be awake for… read more
Fatigue is the worst part of RA and for some reason it appears to be the least addressed by the medical community. I actually retired early because I was doing such a miserable performance at my job. I was an over achiever at work and was so embarrassed by my performance decline.
If I can offer one thing which I read in one of the RA magazines; do not plan anything two days in a row. Work or shop (etc) one day, rest and have a peaceful day the next. This seems to help me.
Know and accept that the days of being a super performer are over. Once you get in your new reality you will enjoy life again.
Life after RA diagnosis can be rewarding.
Bless your heart.. you’ve joined the EPIC FATIGUE team 🙄😏😞 It’s pretty normal my comrade.. but it’s not fun. It can go in cycles or it can come and stay for a few years, like mine did. Finally, after three years of struggling, I’m finally feeling a bit better! The epic fatigue is gone and now.. just the “normal” RA fatigue remains. I’ll gladly trade one for the other. I couldn’t get out of the house, at all, for almost three full years, it was terribly depressing and incredibly isolating. I had already been forced to give up my career and it seemed this disease was also requiring me to lose even more of the me I once knew.
My heart broke for you as you told your story because I totally felt the same way as you did. Sadly... it’s a very real side effect of RA... but it does pass, I promise.
I’m 9 years into this journey myself. Finally found a med that appears to be working! I get an infusion of Rituxin every six mo’s. I had tried every med known to treat RA (some twice) with NO forward progress until I tried the Rituxin.
You hang in there friend... Everybody with RA completely understands what your going thru.
Take EXTRA GOOD care of YOU! Epsom salt baths, infrared sauna and meditation have been very very helpful for me.
I too have found the fatigue to be the worse part of the RA. It seems the only time I feel like myself again is when I am on the prednisone. I find that green tea and plenty of fruit and vitamins helps a little. I have learned to let things go and use my energy for the important things in life. I live alone with two dogs and foster small older or sick dogs and spend time with my grandchildren. If there is dust on the furniture so be it. I keep up with the basic cleaning and try very hard to enjoy the good things in life instead of dwelling on what else needs to be done.
Fatigue I have pushed through for 40 years. My last few years in the working world I survived on caffeine and adrenalyn. When I retired, I slept for about 6 months... I guess I was channeling my inner bear (LOL).. Now, I am learning to ask for help. Then wait for it. Hard to do. I become afraid the task will not be done.. but it always is. Learning patience. And acceptance of my own and other's imperfections. Still hard to do. Wouldn't still be here without the help of Almighty God, good medicine and the unconditional love of my good husband. Peace and hope to all of us!
I’ve had RA for too long (+15 years). At the beginning it was very rough until we found what helps. I am on methotraxate twice a week, Simpony ( injection) once a month, Folic Acid, daily, Dexilat (stomach) daily. It works great. I haven’t had a flair up in ages. I exercise, do volunteer work, travel and have a “normal” life. I am a little stiff when I get out of bed or if I sit too long but once I move it goes away. I do have some deformities on my fingers, I have one bad wrist but overall it’s not bad. The only thing that has changed is that lately I have pain (not too bad) on my right hip ( never before) when I put weight on it. I don’t know anymore what is caused by RA or something else. I talked to my doc and he suggested a shot of Cortizone which I might try iit. Anyway, this is what works for me. I wish everybody good luck and no pain. Don’t give up.