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I was diagnosed with RA a month ago after pain starting in my feet amd migrating very very quickly to other places. The RF level of 1400 and CCP of 275 had my Primary care sending me to a rheumatologist. I had one visit that consisted of background info...xrays and a ton of additional paperwork. I don't see her again for another couple of weeks. My research hasn't been able to determine how high these levels are...would be very interested on any of your experiences. Thanks
Normal RF levels should be less than 14. Since yours is 1400 you have a very extremely high and active RA. Did the rheumy put you on steroids to at least get you started in getting you out of pain? That's usually the first drug - ask for Medrol instead of Prednisone. They are both steroids and work the same, however I have found that the Medrol causes less side effects. The rheumy will probably start you on methotrexate to go along with the steroid. After a while, if these are not working and the doses have been adjusted, the doctor will probably recommend a biologic to be added.
I have had RA for 13 years. My initial RA factor was 638. I always thought that was high until I saw your numbers.
Hang in there. Keep in mind that it can often take months before all the meds kick in and get you out of pain and functional. The key is having a rheumatologist that fights to get you under control and listens to you.
If you have any other questions, feel free to contact me.
A BIG question we all face, does the benefits out weigh the risks? I myself can tell you, they're is no right answer! Unfortunately for myself, I'm unable to have IV infusions. Diagnosed w stage1 Melanoma, kidney infections and liver enzymes 3× they're normal limits.!!! Lefludamide & Vemova were my RA meds at the time. Chgd from Methotrexate. My options are very limited now. I work in Home Health, am a widow, and push like a plow everyday! Forgive me if I have frightened anyone, certainly not my intentions. Thank God for this support group and together "We are RA Family!" See Rheumatologist in 2wks. Keeping my faith strong and praying for the day "one medication is all we need!" God bless you all with love and prayers🙏💝
That is way high!
@A myRAteam Member I don't know that the infusions are the first choice of the doctors. They seem to gravitate to Humira and Enbrel. However, there have been many posts regarding the infusions. I was on remicade for 11 years and it was wonderful. Gave me my life back and got me out of pain.
I don't understand that no one has mentioned they get infusions for there RA. There are a lot of different Meds. I get Rhemicade every 6 weeks plus Meth once a week.
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