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A myRAteam Member asked a question 💭
Electra, TX

What are the symptoms of RA lung nodules or lung involvement from personal experience?

March 26, 2017
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Answer Summary

Members shared varied experiences with lung nodules caused by rheumatoid arthritis, with some discovering them only after coughing up blood or... Read more

Members shared varied experiences with lung nodules caused by rheumatoid arthritis, with some discovering them only after coughing up blood or through routine lung examinations, while others reported no noticeable symptoms at all. Several members described reduced lung capacity, ground glass patterns, scarring, and difficulty with physical activities like climbing stairs, with one member noting their breathing capacity decreased by about 25 percent and another mentioning their nodules were initially mistaken for cancer. A recurring theme was the importance of vigilant monitoring through CT scans, immediate adjustment of medications like methotrexate when lung involvement is detected, and staying in close communication with both rheumatologists and pulmonologists to track any changes over time.

A myRAteam Member

There are no symptoms most of the time. Mine were found by my rheumatologist when she was listening to my lungs. That has been about a year ago and the pulmonologist has been monitoring for changes via ct scans.

March 27, 2017
A myRAteam Member

Please keep us informed...we care. God's Blessings, Linda

March 30, 2017
A myRAteam Member

I have RA and ILT. The lung specialist told me I have a "ground glass" pattern in my lungs and scarring. My breath capacity is reduced about 25%. I have a handicap placard (love it), which helps. I hate stairs and hills. I'm 50.

March 28, 2017
A myRAteam Member

I was coughing up blood and they did an xray. 3 doctors thought it was cancer. It was my RA nodules. I don't even feel they are there.

March 26, 2017
A myRAteam Member

Hi Glenda

did your doctor prescribe to you a drug called methotrexate?

March 29, 2017

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