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A myRAteam Member asked a question πŸ’­
Los Angeles, CA

That's basically my question. I am pretty new to this, and I thought that I would find a medicine that would take the pain away for good, as long as I stayed on it. But now I think that the pain may never go away completely. And it seems to go up and down. The first time I had my shot I felt pretty good for about a week, and then the pain and fatigue returned. My rheumatologist said yesterday that the goal is to help me maintain my normal functioning, but that may mean with some pain, and I… read more

October 29, 2016
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Answer Summary

Members responded to someone newly diagnosed who was disappointed to learn that RA medications manage rather than eliminate pain, with many... Read more

Members responded to someone newly diagnosed who was disappointed to learn that RA medications manage rather than eliminate pain, with many sharing that adjusting expectations was one of the hardest early lessons of living with the disease. Several members described their own journeys of acceptance, including finding the right medication combinations (which often took years and multiple trials), learning to focus on what they could still do rather than what they'd lost, and recognizing that managing pain is itself a meaningful achievement compared to unmedicated suffering. A recurring theme was the importance of staying active when possible, being patient through the medication adjustment process, seeking help for the depression that often accompanies RA, and celebrating good days while giving yourself grace on the difficult ones.

A myRAteam Member

I think there's 2 ways of looking at it. I personally wouldn't lower my expectations as it would be like admitting defeat. Keep trying for a more pain free future will in itself push you to that goal, give you something to strive for. The other option is to lower expectations slightly, and if things improve beyond that, fantastic!! You need to pick the option that is going to aid your mental health best, as that's the most important thing. Good luck 😊

October 29, 2016
A myRAteam Member

I know exactly what your question is. You thought medication would basically remove all the pain. That is a hard thing to accept, that your pain can only be managed not cured. A couple of weeks ago I had pneumonia and forgot to order and take my biologic shot. I was in so much pain that it dawned on me that 'managing' this pain is a blessing because when you don't manage it you experience what your body feels like without anything to minimize the pain and you truly appreciate the relief that medication brings. Hang in there. Just listen to your body and be pro-active about being consistent in taking medication.

November 11, 2016
A myRAteam Member

I was the Queen of Denial for the first few years...I thought that one day I would wake up and be just fine...😐 nope. So in the past 12 + years I have had MANY medication changes, health challenges and life changes but this is the new me!!! I am still very blessed. RA is one heck of a disease...ever changing...surprisingly crazy and at times frustrating/maddening!!! Hang in there, we are all in this together!!

November 1, 2016
A myRAteam Member

It's a wicked disease both physically and just as much mentally. It's true that everyone suffers differently and you have to stay positive and continue to battle. In my opinion the 1St 3 years is a full on war with Ra and your own ability to cope with it. Depression goes hand in hand with Ra. Enjoy the good days and there will be a few but expect there to be very much more bad days. A loving family gets you through and never ever let anyone belittle your ability because it's not your fault and your life choices are kind of not your own aanymore.if you expect to much you take longer to except the life changes... Be real...

November 1, 2016
A myRAteam Member

Hello carns. Hope your appointment goes well, keep us posted!! Once you start treatment hopefully you'll see a great improvement. Live in hope!!! Keeping active does help....so they tell me lol

November 7, 2016

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