Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myRAteam Member asked a question 💭
Melita, manitoba, Canada

Today I have been feeling as tho lately my spouce has been avoiding me because he's been my biggest supporter, I talk to him a lot about how im feeling and how i can't always do
these stairs or I can't finish making
supper because my wrists hurt and it would be easier and quicker if he were to just finish for me.. Now I feel like he is being affected from me venting with him. Im sure this just my anxiety telling me that he is avoiding me but right now in this moment I feel as tho he's… read more

October 23, 2016
 · 
Reactions

Answer Summary

Members opened up about the complex dynamics of living with rheumatoid arthritis while maintaining a marriage, sharing both the pain of... Read more

Members opened up about the complex dynamics of living with rheumatoid arthritis while maintaining a marriage, sharing both the pain of feeling misunderstood and the hope that comes from open communication. Several members described their partners' struggles to grasp invisible limitations, offered practical advice like attending counseling together (framed as learning to handle the disease rather than fixing the relationship), printing articles that explain both perspectives, and consistently expressing appreciation even when frustration runs high. A recurring theme was recognizing that spouses also grieve the loss of the life they once shared, that partners may pull away not from lack of love but from their own helplessness and fear, and that healing the gap requires patience, grace, and sometimes professional support to bridge the understanding that no one without RA can fully comprehend.

A myRAteam Member

Candice just try to close the gap with him about this disease as fast as you can even if you have to go to a professional 4 counseling on this new medical issue so it's not a counseling session about your relationship as much as it is is how do we both handle my new medical condition. It softens the blow for a guy to go into counseling thinking he's an issue but he's not the issue is that disease and it's like honey I need help and I need you to help me and then I found a counselor and he going to see a counselor what's wrong with our relationship there's nothing wrong with our relationship but this is something wrong with me medically and the council is going to help us to figure out how and I relationship to handle this because it may be getting a lot worse before it gets any better and I just wanted to hit something in the bottom before it tries to take over our relationship because I love you that much sweetie and that's how I would address it and being a guy I wouldn't be threatened by that matter fact I would feel like you're making me try to be a hero and I appreciate that. God bless you we all love you. Amen.

October 23, 2016
A myRAteam Member

My spouse did not understand at first. When he did I still realized there were times he seem to forget my limitations. I did have to realize that RA affected him also. In the way of limiting what we could do together. One thing that helped, and I am sorry I do not know where I saw it, but I came across an article explaining how I felt and how a person living with someone with arthritis felt. I printed it and gave it to him to read. Told him that was how I felt, how I thought he might feel. And what I felt when he acted certain ways. Even if he didn't mean to, that action made me feel....... I also realized I had to 'remind' him when things were slipping back. It takes time and remember they will never 'get it' all the time. Sorrt so long.

October 23, 2016
A myRAteam Member

Well my spouse retired a year and 1/2 ago, he takes care of the house and the cooking, sometimes I get home on a Friday and he has done the laundry also, without his help I couldn't do it all like I did before,RA
so I told him I would cook on weekends. He gets frustrated at times and doesn't understand what I'm going through, and it does bother me, but I keep,reminding him how much I appreciate his help.

October 26, 2016
A myRAteam Member

Maybe he is having pain of his own and can't share because he feel it might stress you out. Find something you both enjoy and indulge in making one another forget and heal

October 25, 2016 (edited)
A myRAteam Member

Sometimes our spouse's suffer along with us, they also grieve for the old US. When someone Loves you it pains them to see you suffer so. My husband also goes through those times. He probably is just adjusting. Maybe it just is so hard at times to watch you suffer. When he gets his second wind, he will be back to bring there as always. All you can do is Love him, and show him you appreciate him.
Blessings to you and yours

October 25, 2016

Related Questions

View All