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A myRAteam Member asked a question 💭
Dublin, IE

Does anyone else get pain and discomfort I'm their soft tissue arms neck legs feet it's like someone is pulling the tendons/veins from inside and hanging you from them. Pins and needles stiffness etc too. Sorry for the weird explanation but it's the only way I can describe it?

April 9, 2016
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Answer Summary

Members responded to a question about soft tissue pain that feels like tendons or veins are being pulled from the inside, with many confirming... Read more

Members responded to a question about soft tissue pain that feels like tendons or veins are being pulled from the inside, with many confirming similar experiences and attributing it to inflammation in blood vessels, nerves, and soft tissue linings that often accompanies RA. Several members shared practical relief strategies including Epsom salt baths, massage, and medications like Lyrica and gabapentin for nerve pain, while others noted that similar symptoms could also indicate fibromyalgia, diabetic neuropathy, carpal tunnel, or tenosynovitis. A recurring theme was the importance of working closely with rheumatologists to distinguish between overlapping conditions, as many members described managing both RA and fibromyalgia simultaneously, with different medications and approaches needed for each type of pain.

A myRAteam Member

Almost 3 yrs ago my arms and wrists started having similar symptoms 6 months ago it started in my ankles and legs my doc says it is tenosyvitis another RA extra bonus I suppose

April 11, 2016
A myRAteam Member

Massage and Epsom salts soaks help me alot with this kind of pain.

April 9, 2016
A myRAteam Member

Thanks for all your helpful responses. I had my first appointment with my rheumatologist last Friday and she confirmed that I've tested positive for RA and she tested the various parts of my body (pressing on particular points) and could confirm straight away I've a bad case of Fibromyalgia. She said to me to stay on Sertraline 100mg and Vimovo 40mg a day and to start taking Lyrica (initially 25mg once a day for the first week and then build it up to 2 a day the second week. I met my gp today and she has encouraged me to take the Lyrica together with Amitriptyline 10mg - I only took the first Lyrica tablet today (my beloved uncle died last week and I was away at his funeral so didn't want to start new meds while away) and I'm scared of starting both the anti convulsant and the sleeping tablet for the first time together... anyone else on both of these? I have a lot of weight on and really hate the thoughts of putting on more weight. I've been eating clean/organic under the guidance of a nutritionist for almost 2 months and was promised the weight would fall off me but I have actually continued to gain. I have heard from a friend that Lyrica gave her terrible brain fog. I'm in a lot of pain at the moment and very stiff. Mind over matter though and I'm determined to push on for the sake of my 2 beautiful babies whom I'm so blessed to have. Hope you guys feel better soon. Have any of you tried LDN? I have heard it is great. I had a lovely Epsom salt bath tonight so I'm ready for bed now.

April 27, 2016 (edited)
A myRAteam Member

I was on Neurontin, or Gabapentin, for Diabetic Neuropathy, but it made the brain fog worse. I
m taking Lyrica now and it seems to work better.

April 27, 2016
A myRAteam Member

Have you talked to your Dr.about fibromyalgia? I have RA and Fibromyalgia. I learned to tell the difference in pain because for me it's 2 different types. Your explanation was not weird. For me the soft tissue pain and feeling like I'm on fire is fibro. The joints nodes pain redness selling unable to move is my RA. Through research and conversations with Dr there are some issues that are same with both illnesses. Brain fog, exhaustion, depression, stiffness. My fibro care provider started me on gabupentin. That made so much difference in fibro it calms down nerve endings.

April 14, 2016

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