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Do You Think Your Fibro Diagnosis Is Wrong?

Do You Think Your Fibro Diagnosis Is Wrong?

When my rheumy diagnosed my RA, she also added fibromyalgia to the list. Granted, she said she wasn't completely convinced that I had fibro as well, but she put it down as a possibility to keep an eye on, because I was describing symptoms that seemed more like fibro than RA. However, since then, I have spoken to many people online who have RA who say that they experience body aches along with their RA symptoms, but do not have the pressure point pain that people with fibro have. I did not have… read more

A myRAteam Member said:

I have fibromyalgia as well as RA. I think your Dr adding meds for Fibromyalgia as a preventive is a great idea. You have to remember not every pain is RA it also can be Osteoarthritis you have to determine which is which.

posted 11 months ago
A myRAteam Member said:

Not sure if either the RA or the Fibro diagnosis could be wrong. It's very challenging to accept a diagnosis when all of the tests come back negative. Leaves lingering doubt in your mind. All I know is that I experience pain daily. Usually not severe to the point where I can't function...but still...daily pain...so there is obviously something that is wrong. I think that there is still so much that they don't know and it is very confusing as often, depending on the visit, you get told different answers. Frustrating!

posted about 6 years ago
A myRAteam Member said:

I too am confused by this. I was diagnosed with fibro long before RA and struggle to put what "box" each pain belongs to- it's impossible and frustrating. Then when I saw my Rheumatologist and questioned this he said it's probably more RA and fibro is secondary if at all. Super confusing.

posted about 6 years ago
A myRAteam Member said:

I've also been told I "likely" have Fibromyalgia, however, when I actually have a doctor's appointment, typically, they've not observed a lot of the pressure point pain that is supposed to come with it. I struggle with tenderness in my inner knees with sleeping and often get the "creepy crawlies" in my legs and arms. I also find that I have a lot of trouble with my shoulders being sensitive and hurting when I carry anything on them (even a light bag/purse). I too get conflicting messages about what is RA vs. Fibromyalgia or "soft tissue" pain. It's very frustrating and confusing. I was told the option for my knee/leg and arm issues was to go on an antidepressant to help alleviate the pain and allow me to sleep better. Didn't like that idea....so I've not started that yet. Trying to see if I can just live with it as is...but not sure that is the right long term solution either.

posted about 6 years ago
A myRAteam Member said:

I was diagnosed with RA 11 years ago and fibro about 6 or so years ago. I find the pain is different. The RA is definitely in the joints, the fibro feels more like a bruise. I also sometimes get odd sensations in my feet.

posted about 6 years ago
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