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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Deformity

A myRAteam Member asked a question 💭
Jenkins, KY

Any one that has deformity or has it coming I would like to ask how u knew and how it felt . If these are stupid questions please look over me please look over me blood pressure is throughs the roof, pain level is 10 +++++++ , major fibro flair up
Any way my toes feel like it's had to say they either frost bit numb and tingle and then they turn and draw down
My hands do almost the same my joints Feel like glass they get numb and week . I have dropped several things because of it and… read more

April 22, 2015
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Answer Summary

Members shared their experiences with joint deformities caused by rheumatoid arthritis, describing symptoms that included fingers turning... Read more

Members shared their experiences with joint deformities caused by rheumatoid arthritis, describing symptoms that included fingers turning sideways, knuckles swelling into sausage-like shapes, toes crossing over each other, and joints locking or freezing in certain positions, often preceded by clicking, numbness, tingling, and gradual loss of range of motion. Several members offered practical advice and encouragement, including cortisone shots for locked fingers, nerve testing to rule out neuropathy, working with a skilled rheumatologist to find the right medication to stop joint damage, and using humor and support to cope with the emotional toll of visible deformities. A recurring theme was the importance of paying attention to early warning signs, advocating for proper treatment, and leaning on the community for understanding and solidarity during difficult days.

A myRAteam Member

Go to a very good neurologist. Get a nerve test. I did and found out it is neuropathy. According to her the only med to take is a seizure med. as for the deformity--my sister has that in her spine. That is common. You may not be on the right med for RA to stop joint damage. Make sure you have a great RA doc. I don't think my sister's doc is very good because he has never tried any optional meds. I don't think hers is working. She has a lot of deformity in joints and getting worse.

May 1, 2015
A myRAteam Member

My fingers are all turned sideways I have huge nodules on all my knuckles. Talk about deformity. And my left ankle is turned in that I step on the side of my foot and not the bottom of my foot. I see the surgeon next week. God bless u all

April 30, 2015
A myRAteam Member

I had the same thing I thought I had corpul tunnel for about a year and thought my feet was hurting and numb because I was working alot
Boy was I wrong

April 24, 2015
A myRAteam Member

@Deformity, I have deformity in my toes, which actually was my first clue I had RA. Started out as random numbness and tingling. I'm on my feet 10+ hours at work daily, so I put down the pain to that. Even when my toes started crossing over each other, I thought it was work related. Wish I'd been more in tune with my body when it all started... Surgery in 3 weeks.

April 24, 2015
A myRAteam Member

Thanks Ruth happy to hear you were able to get shots in your fingers. Hugs

April 23, 2015

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