Rheumatoid Arthritis

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Has anyone had a big toe fusion?

Has anyone had a big toe fusion?

Was wondering if it's helped? How is it functioning? Is walking and everyday activities more or less difficult ? I've had injections but now they're not helping any longer. Rheumy says its fusing itself at this point but at the wrong angle.

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A myRAteam Member said:

Your big toe controls balance.. How are you doing today

posted 2 days ago
2 medium

Anyone on Autologous Serum Eye Drops?

Anyone on Autologous Serum Eye Drops?

My corneal specialist says it’s my next option to consider for my severe sicca symptoms from Sjogrens.
Anyone try this?
Did it work well?
Still on long term?
Did benefit last year to year?

Thx.

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A myRAteam Member said:

Yup, that’s it. Have to keep refrigerated and blood draws frequently...I’m trying to see if it really worked for anyone’s dry eyes when all else failed.… read more

posted about 5 hours ago
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Is there Anyone who has RA and has had a hysterectomy or is going to have a hysterectomy?

Is there Anyone who has RA and has had a hysterectomy or is going to have a hysterectomy?

I have uterine fibroids and my dr wants me to get a hysterectomy but I’m afraid and don’t know what to do. Any thoughts?

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A myRAteam Member said:

I’m 45, but my uterus is the size of a 5 month pregnancy and my back aches. I all so get pelvic pain during my period, have heavy bleeding for about a… read more

posted 3 days ago
1 medium

Would like input on methotrexate and folic acid recently diagnosed with RA

Would like input on methotrexate and folic acid recently diagnosed with RA

had Iritis which is a very rare inflammatory eye infection, I've dealt with glaucoma for over 15 years, my eye specialist put me on steroid eye drops, it went away, when we tapered off of the steroids, it came back, so, at that point, she had me tested for autoimmune diseases, and RA and Lupus showed up. I have seen a rheumatologist, they want me to start methotrexate and folic acid. I have neuropathy from my waist down on both sides, I… read more

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A myRAteam Member said:

My husband had serious side effects from Methotrexate. It changed his personality. His friend with RA also had a bad reaction to Metho and ended up in… read more

posted about 24 hours ago
8 medium

Has anyone relocated to a new home, or considered doing it, because of this disease?

Has anyone relocated to a new home, or considered doing it, because of this disease?

I’m starting to get anxious over the what-ifs when I think about the impact that this disease could have on me down the road. My husband would like to retire in about 5 years, and I already had to stop working four years ago because of another long-term disease that has pretty much rendered me disabled before R.A. was added to the picture. We’re almost 60 and trying to decide where we should live considering the physical impact… read more

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A myRAteam Member said:

@A myRAteam Member
Hang in there! So happy your husband is cancer free. Maybe talk to your RA doctor you may not be on the right meds. I didn't think at… read more

posted about 5 hours ago
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Found out this week that my sister has RA. She's about to turn 61

Found out this week that my sister has RA. She's about to turn 61

Does this happen more or is it unheard of?

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A myRAteam Member said:

Yes that’s about the time I was finally diagnosed with it. I do believe I had it long but was told it was just arthritis but it wasn’t so I suffered… read more

posted 2 days ago
4 medium

Is anyone familiar with the drug Leflunomide?

Is anyone familiar with the drug Leflunomide?

My rheumatologist wants to take me off of Methotrexate and put me on Leflunomide. I've never heard of this drug and I was wondering if anyone is familiar with it and whether or not it worked for you. Thank you in advance for any answers!

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A myRAteam Member said:

Ya, taking drugs with potential bad side effects can be scary....but once they work....having a life after going off them can be even more terrifying

posted about 6 hours ago
5 medium

This may be a dumb question- but I have added people to my team and only see 1 or 2 of them show up

This may be a dumb question- but I have added people to my team and only see 1 or 2 of them show up

I have added several people to my team, but only see things from one or two people in my team feed. Is there something else I need to do?

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A myRAteam Member said:

I'm glad to see I'm not the only one having trouble with this! Thanks all!

posted 5 days ago
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Wheelchair users?

Wheelchair users?

I am being “fitted” for a wheelchair tomorrow and it got me to wondering how many others are in my same situation (becoming a wheelchair user). I have multiple disease processes that have led to this point in my life, and I am at a stage where I need a wheelchair, and I’m having difficulty accepting it. Does anyone have any advice/experience with becoming a wheelchair user, and how you were able to accept it and be positive?

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A myRAteam Member said:

So good to hear your story! That is a lesson for us all! Life does go on in many good ways. God is always watching over us!

posted 5 days ago
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