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Rheumatoid Arthritis

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Autoimmune Diets

Autoimmune Diets

Any one who works full time & also raising a family have success in applying the autoimmune with RA. I have several friends who are doing a more holistic approach but it just seems like it is very time consuming & expensive. Anyone have shortcuts or hacks that they tried & have worked. Just thinking about planning every little thing that goes in my mouth & preparing everything just exhaust me!

A myRAteam Member said:

I’ve been doing an elimination diet, AIP to figure out my Inflammation triggers. I found a lot of info and recipes at autoimmunewellness.com. I was… read more

edited, originally posted 2 months ago

Shaking Hands

Shaking Hands

I am curious what fellow RA friends do when someone puts out there hand to shake it. I squirm when this happens as some people really squeeze and it hurts but I hate being rude.

A myRAteam Member said:

I say hi with wave or hug

posted over 1 year ago

Ifnyou Do Not Have Pain Are You In Remission?

Ifnyou Do Not Have Pain Are You In Remission?

RD is not curable so what is remission? I have heard some people say that their medication is working and they are back to a normal life. So how do you judge the effectiveness of medications? I found a report published with the National Institute of Health that found that of the patients who felt well and experienced no pain, found that their new MRI shows that they were still having significant deterioration.
I have experienced that too. Actemra had reduced my CCRP… read more

A myRAteam Member said:

@WilliamDBrewer - As KayFay pointd out, I don't think the word "remission" is generally used with RA since it is an incurable lifelong disease. Still… read more

posted about 2 years ago

Muscle Twitches/shakes During Flares

Muscle Twitches/shakes During Flares

I am still within my first year of diagnosis so I am wondering if this is part of RA or maybe something else.I am noticing frequently that my shoulder and finger muscules will constantly twitch, pulse or become shakey. This sometimes happens with or without joint pain. It will almost be to the point where my hand is shaking and I cannot read text on my phone. Has anyone else experinced this and is this a normal progression of RA?

A myRAteam Member said:

glad its all working out for you @A myRAteam Member :)

posted 10 months ago

Pain = Fatigue?

Pain = Fatigue?

Ever since I was diagnosed and started consuming all the information I could about Auto Immune disease, I've been perplexed about why these diseases cause fatigue. It just didn't make sense to me. Just recently, I read an article by someone who also has AS, that really clicked for me. I may be slow to the boat on this one, but I thought I would share. In the article she says, "It takes an incredible amount of energy to be in pain all the time!" No wonder we are always fatigued! I never… read more

A myRAteam Member said:

Warriors we are! Blessings to all!

posted 2 months ago

Who Are You Sleeping With Tonight? I Sleep With Someone Different Nearly Every Night, What About You???

Who Are You Sleeping With Tonight? I Sleep With Someone Different Nearly Every Night, What About You???

Being ever the tease I thought this question will raise a few eyebrows...lol.

Seriously, there are so many nights where my condition leaves me listless and sleepless.. I turn over and over again the events of the day until I'm so tired that when I do wake up the following morning I'm more tired then ever before and this affects my day and just adds to my fatigue.

As you may have guessed, my post is meant to be… read more

A myRAteam Member said:

Currently doing Isaac Asimov . All his books, not as bland as I thought it might be. But with work and studies I don't do much more than a few minutes… read more

edited, originally posted almost 4 years ago

Best Way To Explain RA To Family Members?

Best Way To Explain RA To Family Members?

I was diagnosed with Seronegative RA In November 2018. I just turned 29 in February. Positive ANA and have been on Plaquenil, Prednisone, and now highest dose of Methotrexate. Nothing has seemed to help and I am getting progressively worse. All of my bloodwork comes back negative for RF, CCP. My Mother has had RA for the last 27 years, and she was Seronegative as well early on and is now Seropositive. I have her support in this because she knows firsthand the… read more

A myRAteam Member said:

God Bless you, God Bless us all. It is so hard to explain to family and friends. this Invisible disease of RA especially in its early stages, the pain,… read more

posted about 2 months ago

I Was Misdiagnosed With Seronegative RA

I Was Misdiagnosed With Seronegative RA

Close to 3 years ago, my Rheumatologist diagnosed me with Seronegative RA in my hands , feet, and wrists. I have since been on plaquenil, sulfazalazine, MTX, and leflunomide, at one point or another. To make a long story short, I went for a second opinion to a renowned Rheumatologist in Dallas, and one most recently at the Cleveland Clinic in Ohio. Both of these doctors are giants in the world of Rheumatology. They both believe I have been misdiagnosed wirh Seronegative… read more

A myRAteam Member said:

Thank you. The 2 second drs opinions said the same thing about variance of ultrasound results and accuracy. But my first rheumatologist was so… read more

edited, originally posted almost 2 years ago

What Words Do You Use Instead Of The General Ones.

What Words Do You Use Instead Of The General Ones.

I never use the word better anymore,i always say "I hope you feel brighter" instead as we will never get better will we. xxxxx

A myRAteam Member said:

Good point to make! I often say to people with RA that I hope you feel better but you have made me rethink that. Feeling brighter is nice!

posted almost 4 years ago

Saving Money On A New Sofa

Saving Money On A New Sofa

What do you do when your knees no longer allow you to get up off the sofa, change the sofa? Maybe not.....

I paid a fortune on a sofa set about five years ago that to be honest it was going to be the last one I ever wanted to buy.

So being diagnosed with RA where now my knees are no longer as strong as they were to get my size ZERO body ( size zero body, yeah right) Up off the sofa the prospect of changing the sofa it is not something I want to do....

So I have found an alternative… read more

A myRAteam Member said:

I use bricks 3 on each leg.

posted 7 months ago
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