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Rheumatoid Arthritis

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Does Anyone Else Feel Like A Whimp When They Have To Admit That They Are Just Not Having A Good RA Day?

Does Anyone Else Feel Like A Whimp When They Have To Admit That They Are Just Not Having A Good RA Day?

I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?

A myRAteam Member said:

I hesitate to express my pain too. I think others have a hard time understanding or relating to what I am feeling so their response isn’t always comforting.

posted 2 months ago

How Do You Describe A Flare To Someone Who Doesn't Have RA?

How Do You Describe A Flare To Someone Who Doesn't Have RA?

My flares aren't always exactly the same but yesterday I flared badly. I can describe it to my daughter, sorry guys most women will get this, as the overwhelming body aches and exhaustion on PMS. My entire body feels swollen and it throbs and joints ache like a fever. For my hubby and son I can only describe it as throbbing and aching in my entire body. and exhausted like I've run a marathon and haven't slept for days. And even with all that, it doesn't really describe the feeling. So I'm… read more

A myRAteam Member said:

Well, I'm pretty dopey, I suppose. I had absolutely no idea what a flare is until last year, and I was diagnosed in 2015! I just thought I was wimpy, whiny, couldn't understand why I had lost almost… read more

posted 4 months ago

What Has RA Stolen From You?

What Has RA Stolen From You?

1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!

2. Hands and wrists- always dropping stuff, can't open anything

3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.

4. Mental clarity is now… read more

A myRAteam Member said:

I don't have an energy that I used to have I have an Outreach Ministry where are free people less fortunate than myself I feed them full course meals on the 22nd of this month I will be feeding them… read more

posted almost 2 years ago

Anxiety And Insomnia

Anxiety And Insomnia

I have had insomnia for a few months and recently had shortness of breath with little exertion. I had a bad episode of aniexty last week and am now being treated for that along with my RA. Has anyone else suffered from these?

A myRAteam Member said:

Dear friends. I went through this for a long time. It started when my parents died six weeks apart and I was the executor and had to deal with my mentally ill siblings. Major stress. And that was… read more

posted over 1 year ago

Is There Any Medication To Help With Fatigue?

Is There Any Medication To Help With Fatigue?

I need help with this constant fatigue. I can't get enough sleep no matter how many hours I rest. I sleep at work and have fallen asleep driving several times. Is there anything that would help? I exercise and drink water and all that jazz.

A myRAteam Member said:

I agree. Sleep is a medicine that heals your body. Take valerian or melatonin or CBD.

posted over 1 year ago

Is My Fatigue Normal?

Is My Fatigue Normal?

Hi all! I am 22 and I've had RA for a year. I must say- it hasn't disrupted my life too much until my last rheum visit a month ago. My inflammation markers were down but the arthritis has traveled to my hips, so my rheum wanted to up my mtx dose and also add another DMARD. I tried sulfasalazine but got so sick on it. After 10 days, I stopped it, but it feels like my body has been in such a dip since then. I am suffering from debilitating fatigue- I can sleep for 8 hours and then be awake for two… read more

A myRAteam Member said:

Lol Some words came out wrong using the voice Button and it don't always write what you say
😁

posted 5 months ago

Good Things To Tell Family & Friends When You Just Can't....

Good Things To Tell Family & Friends When You Just Can't....

Even after having this disease 17+ years I can't find words for people. Maybe I'm tired of saying the same things over and over like a broken record. 🎙🎙 Like most everyone on here, I'm in pain 24/7. It NEVER goes away or stops. The only thing that may change is the degree of pain, where it is at and movement. I tell people constantly I dont feel well and have to cancel. I know people are sick of hearing I NEVER feel well or I am not making it over AGAIN. But seriously... what am I supposed… read more

A myRAteam Member said:

@A myRAteam Member, thank you for doing that. I am nervous to order anything from overseas these days as our postal service has all but collapsed due to corruption, theft and ineptitude. One either… read more

posted about 3 years ago

Brain Fog

Brain Fog

There are some days I feel like I am getting early onset Alzheimer's with this brain fog, I can't find the words I need to say or remember my student's names. Has anybody found anything that helps? Any food or vitamins?

A myRAteam Member said:

I like many of you felt trapped. Now I can realize that I am not alone. I have participated in Alzheimer's research over 10 yrs, so with dealing with RA, dementia diagnosis in family, it was driving… read more

posted over 1 year ago

Does Anyone Find Methotrexate To Work Really Well?

Does Anyone Find Methotrexate To Work Really Well?

I keep hearing people talk about how intolerable @methotrexate is. I am curious to hear from people who find it to be helping. I started it 3 weeks ago and I can't believe how amazing I feel. Its like someone oiled my joints and told my muscles to behave! I wonder if it's something specific to my condition. I'm sero negative poly inflammatory arthritis. Essentially that just means I have Ankylosing spondylitis symptoms and RA. Virtually every joint is involved with any number and combination… read more

A myRAteam Member said:

Didn't work for me as was so poorly from it, both orally and by self injection.

posted about 1 year ago

Does Anyone Have Wheezing Either As A RX Side Effect Or Along With RA Symptoms.

Does Anyone Have Wheezing Either As A RX Side Effect Or Along With RA Symptoms.

I had asthma as a child and have had problems only when sick with bronchitis/pneumonia. But since my RA diagnosis (or starting Methotrexate) I wheeze frequently. I find I am extremely sensitive to allergens and will wheeze with very little stimuli. I go to the allergy/asthma specialist next week, but I feel like this is not Asthma. My instinct is that it related to the RA or a medication side effect.

Thanks in advance for your thoughts.

A myRAteam Member said:

I would see a pulmonologist. I just had a chest xray and now a chest CT scan because nodules appeared in my lungs !

posted over 1 year ago
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