Rheumatoid Arthritis

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8 medium

Biologics

I know we've all discussed this before, but I'm wondering how many of us have tried several biologics (for 3-4 months) without ANY luck.
I am having the hardest time explaining RA and my treatments to friends/family. Some don't understand that 20-40% of RA sufferers have a resistance to their treatments.
I had a friend tell me today that I have been misdiagnosed due to my treatments not working and my constant swollen joints/body.
It's so frustrating trying to explain it all! I do believe there may be… read more

posted almost 3 years ago
A myRAteam Member said:

I was told that sometimes it takes 6 months to kick in. I'v been on Enbrel for 2 months and it seems like it is finally starting to work (a little)

posted 2 days ago
4 medium

How do you describe a flare to someone who doesn't have RA?

My flares aren't always exactly the same but yesterday I flared badly. I can describe it to my daughter, sorry guys most women will get this, as the overwhelming body aches and exhaustion on PMS. My entire body feels swollen and it throbs and joints ache like a fever. For my hubby and son I can only describe it as throbbing and aching in my entire body. and exhausted like I've run a marathon and haven't slept for days. And even with all that, it doesn't… read more

posted 9 months ago
A myRAteam Member said:

I have not been in remission since last May. Every day is different. Sometimes the soles of my feet bones hurt so bad I can barely walk and I can hear… read more

posted 4 days ago
8 medium

Does anyone wear a medical ID bracelet???

I purchased and received my medical ID bracelet today. It has a barcode on the inside of it that allows medical personnel access to my personal/medical information. I'd read somewhere that it's good to inform medical caregivers of any RA medications that are being taken, given they interact with so many other medicines.

posted about 3 years ago
A myRAteam Member said:

That would be A good idea

posted 2 months ago
3 medium

Does anyone else feel like a whimp when they have to admit that they are just not having a good RA day?

I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?

posted over 3 years ago
A myRAteam Member said:

It can be difficult to do my hair in the morning as my hand and wrists hurt to hold the hairbrush and blowdryer. Ugh. I understand

posted 7 days ago
7 medium

What has RA stolen from you?

1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!

2. Hands and wrists- always dropping stuff, can't open anything

3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.

4. Mental clarity is… read more

posted over 2 years ago
A myRAteam Member said:

My personality! My ability to dance, always first up and last off the dance floor. Now can hardly walk! Really can relate to everybody else's comments… read more

posted about 4 hours ago
7 medium

Anxiety and insomnia

I have had insomnia for a few months and recently had shortness of breath with little exertion. I had a bad episode of aniexty last week and am now being treated for that along with my RA. Has anyone else suffered from these?

posted 10 months ago
A myRAteam Member said:

Go to beat this insomnia.

posted 3 days ago
9 medium

Is there any medication to help with fatigue?

I need help with this constant fatigue. I can't get enough sleep no matter how many hours I rest. I sleep at work and have fallen asleep driving several times. Is there anything that would help? I exercise and drink water and all that jazz.

posted about 1 year ago
A myRAteam Member said:

Wow I’ll try anything.

posted 12 days ago
1 medium

Does anyone find methotrexate to work really well?

I keep hearing people talk about how intolerable @methotrexate is. I am curious to hear from people who find it to be helping. I started it 3 weeks ago and I can't believe how amazing I feel. Its like someone oiled my joints and told my muscles to behave! I wonder if it's something specific to my condition. I'm sero negative poly inflammatory arthritis. Essentially that just means I have Ankylosing spondylitis symptoms and RA. Virtually every joint is involved… read more

edited, originally posted almost 2 years ago
A myRAteam Member said:

When I was diagnosed with RA in 2015, my first treatment was Methotrexate, 4 pills a week. My Rheumatologist had to gradually increase the dosage to 8… read more

posted about 1 month ago
3 medium

Does anyone have wheezing either as a RX side effect or along with RA symptoms.

I had asthma as a child and have had problems only when sick with bronchitis/pneumonia. But since my RA diagnosis (or starting Methotrexate) I wheeze frequently. I find I am extremely sensitive to allergens and will wheeze with very little stimuli. I go to the allergy/asthma specialist next week, but I feel like this is not Asthma. My instinct is that it related to the RA or a medication side effect.

Thanks in advance for your… read more

edited, originally posted almost 3 years ago
A myRAteam Member said:

my husband and I don't smoke and after I lost my voice for 2 years (the doctor figured it was either one of two things that caused that , # 1 the… read more

posted over 2 years ago
3 medium

CBD Concerns

I see a lot of users here touting the miracle that they feel is CBD oil. Some are even trying to sell it giving their e-mail address, or FaceBook page. I get it. I tried it a few years ago too. We don't want pain and we want to leave no stone uncovered. HOWEVER. It can be very expensive! As I know most people here are on fixed income I wanted to share this excellent medical paper about the benefits and risks of trying CBD. I feel strongly that a lot of people with serious or chronic illness fall… read more

edited, originally posted 10 days ago
A myRAteam Member said:

KimmyCA, isn't it legal in your state? We are legal here for medical use but very costly. The companies selling it around here doesn't have THC. it's… read more

posted about 9 hours ago
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