I know we've all discussed this before, but I'm wondering how many of us have tried several biologics (for 3-4 months) without ANY luck.
I am having the hardest time explaining RA and my treatments to friends/family. Some don't understand that 20-40% of RA sufferers have a resistance to their treatments.
I had a friend tell me today that I have been misdiagnosed due to my treatments not working and my constant swollen joints/body.
It's so frustrating trying to explain it all! I do believe there may be… read more
1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!
2. Hands and wrists- always dropping stuff, can't open anything
3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.
4. Mental clarity is… read more
My flares aren't always exactly the same but yesterday I flared badly. I can describe it to my daughter, sorry guys most women will get this, as the overwhelming body aches and exhaustion on PMS. My entire body feels swollen and it throbs and joints ache like a fever. For my hubby and son I can only describe it as throbbing and aching in my entire body. and exhausted like I've run a marathon and haven't slept for days. And even with all that, it doesn't… read more
I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?
I purchased and received my medical ID bracelet today. It has a barcode on the inside of it that allows medical personnel access to my personal/medical information. I'd read somewhere that it's good to inform medical caregivers of any RA medications that are being taken, given they interact with so many other medicines.
I need help with this constant fatigue. I can't get enough sleep no matter how many hours I rest. I sleep at work and have fallen asleep driving several times. Is there anything that would help? I exercise and drink water and all that jazz.
Hi all! I am 22 and I've had RA for a year. I must say- it hasn't disrupted my life too much until my last rheum visit a month ago. My inflammation markers were down but the arthritis has traveled to my hips, so my rheum wanted to up my mtx dose and also add another DMARD. I tried sulfasalazine but got so sick on it. After 10 days, I stopped it, but it feels like my body has been in such a dip since then. I am suffering from debilitating fatigue- I can sleep for 8 hours and then be awake for… read more
I have had insomnia for a few months and recently had shortness of breath with little exertion. I had a bad episode of aniexty last week and am now being treated for that along with my RA. Has anyone else suffered from these?
Even after having this disease 17+ years I can't find words for people. Maybe I'm tired of saying the same things over and over like a broken record. Like most everyone on here, I'm in pain 24/7. It NEVER goes away or stops. The only thing that may change is the degree of pain, where it is at and movement. I tell people constantly I dont feel well and have to cancel. I know people are sick of hearing I NEVER feel well or I am not making it… read more
I had asthma as a child and have had problems only when sick with bronchitis/pneumonia. But since my RA diagnosis (or starting Methotrexate) I wheeze frequently. I find I am extremely sensitive to allergens and will wheeze with very little stimuli. I go to the allergy/asthma specialist next week, but I feel like this is not Asthma. My instinct is that it related to the RA or a medication side effect.
Thanks in advance for your… read more