Rheumatoid Arthritis

Questions + Answers

Don't see your question? ask question
View:
8 medium

Biologics

I know we've all discussed this before, but I'm wondering how many of us have tried several biologics (for 3-4 months) without ANY luck.
I am having the hardest time explaining RA and my treatments to friends/family. Some don't understand that 20-40% of RA sufferers have a resistance to their treatments.
I had a friend tell me today that I have been misdiagnosed due to my treatments not working and my constant swollen joints/body.
It's so frustrating trying to explain it all! I do believe there may be… read more

posted about 3 years ago
A myRAteam Member said:

I can relate so much to trying to explain, I am exhausted just trying. I am on a biologic arava, it's been a month and still no real relief! So the pain… read more

posted 7 days ago
4 medium

How do you describe a flare to someone who doesn't have RA?

My flares aren't always exactly the same but yesterday I flared badly. I can describe it to my daughter, sorry guys most women will get this, as the overwhelming body aches and exhaustion on PMS. My entire body feels swollen and it throbs and joints ache like a fever. For my hubby and son I can only describe it as throbbing and aching in my entire body. and exhausted like I've run a marathon and haven't slept for days. And even with all that, it doesn't… read more

posted 11 months ago
A myRAteam Member said:

Hello Penelope. The only way I can describe it is as if you have proper flu and it’s never ending. If you had a bath try running quite a warm one and… read more

posted about 2 months ago
7 medium

What has RA stolen from you?

1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!

2. Hands and wrists- always dropping stuff, can't open anything

3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.

4. Mental clarity is… read more

posted almost 3 years ago
A myRAteam Member said:

So sorry, you are feeling rubbish. It's a constant battle isn't it?! I have learnt to accept it now, hate what it's done to me and my family too. Life… read more

posted 3 days ago
3 medium

Does anyone else feel like a whimp when they have to admit that they are just not having a good RA day?

I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?

posted over 3 years ago
A myRAteam Member said:

My husband understands, but has started correcting me when I just tell people “l’n okay “, just to avoid discussion. He tells people they should be glad… read more

posted 3 days ago
8 medium

Does anyone wear a medical ID bracelet???

I purchased and received my medical ID bracelet today. It has a barcode on the inside of it that allows medical personnel access to my personal/medical information. I'd read somewhere that it's good to inform medical caregivers of any RA medications that are being taken, given they interact with so many other medicines.

posted over 3 years ago
A myRAteam Member said:

That would be A good idea

posted 5 months ago
7 medium

Anxiety and insomnia

I have had insomnia for a few months and recently had shortness of breath with little exertion. I had a bad episode of aniexty last week and am now being treated for that along with my RA. Has anyone else suffered from these?

posted 12 months ago
A myRAteam Member said:

Yes ma’am. I now have to take metoprolol tartrate all because of anxiety. There is nothing wrong with my heart, but at times the rate will get as high… read more

posted 13 days ago
9 medium

Is there any medication to help with fatigue?

I need help with this constant fatigue. I can't get enough sleep no matter how many hours I rest. I sleep at work and have fallen asleep driving several times. Is there anything that would help? I exercise and drink water and all that jazz.

posted over 1 year ago
A myRAteam Member said:

@A myRAteam Member thanks bunches

posted 9 days ago
3 medium

Does anyone have wheezing either as a RX side effect or along with RA symptoms.

I had asthma as a child and have had problems only when sick with bronchitis/pneumonia. But since my RA diagnosis (or starting Methotrexate) I wheeze frequently. I find I am extremely sensitive to allergens and will wheeze with very little stimuli. I go to the allergy/asthma specialist next week, but I feel like this is not Asthma. My instinct is that it related to the RA or a medication side effect.

Thanks in advance for your… read more

edited, originally posted about 3 years ago
A myRAteam Member said:

Yes! I also had asthma as a child and after being on methotrexate injections for several months I was taking my inhaler all day every day out of… read more

posted 15 days ago
3 medium

CBD Concerns

I see a lot of users here touting the miracle that they feel is CBD oil. Some are even trying to sell it giving their e-mail address, or FaceBook page. I get it. I tried it a few years ago too. We don't want pain and we want to leave no stone uncovered. HOWEVER. It can be very expensive! As I know most people here are on fixed income I wanted to share this excellent medical paper about the benefits and risks of trying CBD. I feel strongly that a lot of people with serious or chronic illness fall… read more

edited, originally posted 3 months ago
A myRAteam Member said:

CharlieRodkeySr you're so right there!!

posted 4 days ago
7 medium

Is my fatigue normal?

Hi all! I am 22 and I've had RA for a year. I must say- it hasn't disrupted my life too much until my last rheum visit a month ago. My inflammation markers were down but the arthritis has traveled to my hips, so my rheum wanted to up my mtx dose and also add another DMARD. I tried sulfasalazine but got so sick on it. After 10 days, I stopped it, but it feels like my body has been in such a dip since then. I am suffering from debilitating fatigue- I can sleep for 8 hours and then be awake for… read more

posted over 1 year ago
A myRAteam Member said:

My daughter is close to your age, 19. Just got diagnosed. But seems to always be tired. Even before diagnosed. I pray you find answers.

posted about 2 months ago
Continue with Facebook
Sign up with your email
Already a Member? Log in
×

Welcome back!

Log in to gain access to the thousands of comments being shared on myRAteam.

log in
×