Rheumatoid Arthritis

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Biologics

Biologics

I know we've all discussed this before, but I'm wondering how many of us have tried several biologics (for 3-4 months) without ANY luck.
I am having the hardest time explaining RA and my treatments to friends/family. Some don't understand that 20-40% of RA sufferers have a resistance to their treatments.
I had a friend tell me today that I have been misdiagnosed due to my treatments not working and my constant swollen joints/body.
It's so frustrating trying to explain it all! I do believe there may be… read more

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A myRAteam Member said:

Lord, I tried Methotrexate, Arava(same thing. Just a cleaner version of Methotrexate) Remicaid, Humira. I have been using Enbrel this past 4 yrs. &… read more

posted 11 days ago
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How do you describe a flare to someone who doesn't have RA?

How do you describe a flare to someone who doesn't have RA?

My flares aren't always exactly the same but yesterday I flared badly. I can describe it to my daughter, sorry guys most women will get this, as the overwhelming body aches and exhaustion on PMS. My entire body feels swollen and it throbs and joints ache like a fever. For my hubby and son I can only describe it as throbbing and aching in my entire body. and exhausted like I've run a marathon and haven't slept for days. And even with all that, it doesn't… read more

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A myRAteam Member said:

I ask what is the worst pain they have ever experienced and take it from their - that helps them understand better if you compare it to something they… read more

posted about 3 hours ago
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Does anyone else feel like a whimp when they have to admit that they are just not having a good RA day?

Does anyone else feel like a whimp when they have to admit that they are just not having a good RA day?

I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?

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A myRAteam Member said:

Yes , I have been the go to person in my family for years . Now , that I am not well most of the time , they don't understand how bad I feel . I want to… read more

posted 2 days ago
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What has RA stolen from you?

What has RA stolen from you?

1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!

2. Hands and wrists- always dropping stuff, can't open anything

3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.

4. Mental clarity is… read more

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A myRAteam Member said:

Amen amen amen. I feel I am in the same boat and it is sinking fast. Pain fatigue brain fog depression no balance and getting very afraid.

posted about 1 month ago
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Does anyone wear a medical ID bracelet???

Does anyone wear a medical ID bracelet???

I purchased and received my medical ID bracelet today. It has a barcode on the inside of it that allows medical personnel access to my personal/medical information. I'd read somewhere that it's good to inform medical caregivers of any RA medications that are being taken, given they interact with so many other medicines.

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A myRAteam Member said:

That would be A good idea

posted 7 months ago
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Is there any medication to help with fatigue?

Is there any medication to help with fatigue?

I need help with this constant fatigue. I can't get enough sleep no matter how many hours I rest. I sleep at work and have fallen asleep driving several times. Is there anything that would help? I exercise and drink water and all that jazz.

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A myRAteam Member said:

Paula Askew

posted about 16 hours ago
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Is my fatigue normal?

Is my fatigue normal?

Hi all! I am 22 and I've had RA for a year. I must say- it hasn't disrupted my life too much until my last rheum visit a month ago. My inflammation markers were down but the arthritis has traveled to my hips, so my rheum wanted to up my mtx dose and also add another DMARD. I tried sulfasalazine but got so sick on it. After 10 days, I stopped it, but it feels like my body has been in such a dip since then. I am suffering from debilitating fatigue- I can sleep for 8 hours and then be awake for… read more

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A myRAteam Member said:

Bless your heart.. you’ve joined the EPIC FATIGUE team It’s pretty normal my comrade.. but it’s not fun. It can go in cycles or it can come and stay… read more

posted 21 days ago
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Anxiety and insomnia

Anxiety and insomnia

I have had insomnia for a few months and recently had shortness of breath with little exertion. I had a bad episode of aniexty last week and am now being treated for that along with my RA. Has anyone else suffered from these?

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A myRAteam Member said:

AwesomeI have a bad sleep problem myself

posted about 1 month ago
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Good things to tell family & friends when you just can't....

Good things to tell family & friends when you just can't....

Even after having this disease 17+ years I can't find words for people. Maybe I'm tired of saying the same things over and over like a broken record. Like most everyone on here, I'm in pain 24/7. It NEVER goes away or stops. The only thing that may change is the degree of pain, where it is at and movement. I tell people constantly I dont feel well and have to cancel. I know people are sick of hearing I NEVER feel well or I am not making it… read more

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A myRAteam Member said:

@A myRAteam Member, thank you for doing that. I am nervous to order anything from overseas these days as our postal service has all but collapsed due to… read more

posted 22 days ago
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Loss of employment???

Loss of employment???

I've noticed some individuals have posted that they've lost their jobs and wondered how often this occurs. Anyone lose their job due to RA? Was it your decision, or your employer?

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A myRAteam Member said:

During a workday ,I had a bad flare and my hands couldn't move causing me to drop tools and expensive equipment. I was put on medical disability and… read more

posted 11 days ago
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