Rheumatoid Arthritis

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Biologics

Biologics

I know we've all discussed this before, but I'm wondering how many of us have tried several biologics (for 3-4 months) without ANY luck.
I am having the hardest time explaining RA and my treatments to friends/family. Some don't understand that 20-40% of RA sufferers have a resistance to their treatments.
I had a friend tell me today that I have been misdiagnosed due to my treatments not working and my constant swollen joints/body.
It's so frustrating trying to explain it all! I do believe there may be… read more

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A myRAteam Member said:

I hear you!! MOST people don't get it!! Struggling to get the right med. Hope these injections work...ACTEMRA

posted 10 days ago
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What has RA stolen from you?

What has RA stolen from you?

1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!

2. Hands and wrists- always dropping stuff, can't open anything

3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.

4. Mental clarity is… read more

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A myRAteam Member said:

Iam no longer able to keep going like I used to. I become exhausted very easily. I have learned to just do what I can and the heck with the rest. When… read more

posted 28 days ago
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How do you describe a flare to someone who doesn't have RA?

How do you describe a flare to someone who doesn't have RA?

My flares aren't always exactly the same but yesterday I flared badly. I can describe it to my daughter, sorry guys most women will get this, as the overwhelming body aches and exhaustion on PMS. My entire body feels swollen and it throbs and joints ache like a fever. For my hubby and son I can only describe it as throbbing and aching in my entire body. and exhausted like I've run a marathon and haven't slept for days. And even with all that, it doesn't… read more

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A myRAteam Member said:

That's me

posted 10 days ago
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Does anyone else feel like a whimp when they have to admit that they are just not having a good RA day?

Does anyone else feel like a whimp when they have to admit that they are just not having a good RA day?

I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?

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A myRAteam Member said:

Yes I do. I have a friend who can’t understand why I don’t dance all the time. I don’t think my family understands either, how much it hurts. People… read more

posted 23 days ago
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Does anyone wear a medical ID bracelet???

Does anyone wear a medical ID bracelet???

I purchased and received my medical ID bracelet today. It has a barcode on the inside of it that allows medical personnel access to my personal/medical information. I'd read somewhere that it's good to inform medical caregivers of any RA medications that are being taken, given they interact with so many other medicines.

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A myRAteam Member said:

That would be A good idea

posted 9 months ago
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Is there any medication to help with fatigue?

Is there any medication to help with fatigue?

I need help with this constant fatigue. I can't get enough sleep no matter how many hours I rest. I sleep at work and have fallen asleep driving several times. Is there anything that would help? I exercise and drink water and all that jazz.

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A myRAteam Member said:

Hi Paula
Sorry to hear your in pain all the time l have the fibromyalgia and rheumatoid arthritis l've been on Actema and of course Percocet it helps… read more

posted about 1 month ago
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Is my fatigue normal?

Is my fatigue normal?

Hi all! I am 22 and I've had RA for a year. I must say- it hasn't disrupted my life too much until my last rheum visit a month ago. My inflammation markers were down but the arthritis has traveled to my hips, so my rheum wanted to up my mtx dose and also add another DMARD. I tried sulfasalazine but got so sick on it. After 10 days, I stopped it, but it feels like my body has been in such a dip since then. I am suffering from debilitating fatigue- I can sleep for 8 hours and then be awake for… read more

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A myRAteam Member said:

Hi I feel for you being so young I've had chronic brittle asthma for 20 years but only been diagnosed with psoriatic arthritis and fibromyalgia and… read more

posted about 1 month ago
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Anxiety and insomnia

Anxiety and insomnia

I have had insomnia for a few months and recently had shortness of breath with little exertion. I had a bad episode of aniexty last week and am now being treated for that along with my RA. Has anyone else suffered from these?

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A myRAteam Member said:

I'm not a fan of taking too many meds except to treat what you have. I don't take sleeping pills or pain meds... I do take a few diet supplements (folic… read more

posted about 2 months ago
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Good things to tell family & friends when you just can't....

Good things to tell family & friends when you just can't....

Even after having this disease 17+ years I can't find words for people. Maybe I'm tired of saying the same things over and over like a broken record. Like most everyone on here, I'm in pain 24/7. It NEVER goes away or stops. The only thing that may change is the degree of pain, where it is at and movement. I tell people constantly I dont feel well and have to cancel. I know people are sick of hearing I NEVER feel well or I am not making it… read more

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A myRAteam Member said:

@A myRAteam Member, thank you for doing that. I am nervous to order anything from overseas these days as our postal service has all but collapsed due to… read more

posted 3 months ago
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Does anyone have wheezing either as a RX side effect or along with RA symptoms.

Does anyone have wheezing either as a RX side effect or along with RA symptoms.

I had asthma as a child and have had problems only when sick with bronchitis/pneumonia. But since my RA diagnosis (or starting Methotrexate) I wheeze frequently. I find I am extremely sensitive to allergens and will wheeze with very little stimuli. I go to the allergy/asthma specialist next week, but I feel like this is not Asthma. My instinct is that it related to the RA or a medication side effect.

Thanks in advance for your… read more

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A myRAteam Member said:

I took two shots of methotrexate and got instant pneumonia both times. I have been on biologics, Enbrel and now Humira , without methotrexate for 5… read more

posted 2 months ago
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