Rheumatoid Arthritis

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How do you describe a flare to someone who doesn't have RA?

How do you describe a flare to someone who doesn't have RA?

My flares aren't always exactly the same but yesterday I flared badly. I can describe it to my daughter, sorry guys most women will get this, as the overwhelming body aches and exhaustion on PMS. My entire body feels swollen and it throbs and joints ache like a fever. For my hubby and son I can only describe it as throbbing and aching in my entire body. and exhausted like I've run a marathon and haven't slept for days. And even with all that, it doesn't… read more

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A myRAteam Member said:

I would say that it is like someone kicked me in the back lots of times

posted 6 days ago
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What has RA stolen from you?

What has RA stolen from you?

1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!

2. Hands and wrists- always dropping stuff, can't open anything

3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.

4. Mental clarity is… read more

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A myRAteam Member said:

@A myRAteam Member I'm so sorry to hear that. But don't let your husband blame your disease on having affair. He wanted it. And he used that to make him… read more

posted 21 days ago
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Does anyone else feel like a whimp when they have to admit that they are just not having a good RA day?

Does anyone else feel like a whimp when they have to admit that they are just not having a good RA day?

I just feel as if family/friends/significant others don't understand when you say you aren't feeling good. I don't want to even admit out loud that I am in pain because I feel like they think I'm trying to get out of something or making excuses. Does anyone else ever feel this way?

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A myRAteam Member said:

I think somehow your medicine is no longer working. You may have become immune to it and need a change.

posted about 4 hours ago
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Is my fatigue normal?

Is my fatigue normal?

Hi all! I am 22 and I've had RA for a year. I must say- it hasn't disrupted my life too much until my last rheum visit a month ago. My inflammation markers were down but the arthritis has traveled to my hips, so my rheum wanted to up my mtx dose and also add another DMARD. I tried sulfasalazine but got so sick on it. After 10 days, I stopped it, but it feels like my body has been in such a dip since then. I am suffering from debilitating fatigue- I can sleep for 8 hours and then be awake for… read more

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A myRAteam Member said:

Just reading the posts about fatigue. I am so glad that I am not alone. I know it sounds weird, but it is a relief to know that I am not making it up or… read more

posted 7 days ago
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Is there any medication to help with fatigue?

Is there any medication to help with fatigue?

I need help with this constant fatigue. I can't get enough sleep no matter how many hours I rest. I sleep at work and have fallen asleep driving several times. Is there anything that would help? I exercise and drink water and all that jazz.

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A myRAteam Member said:

I've had my thyroid tested multiple times. All the T's but can't remember if the autoantibodies were tested or not. In my case my thyroid is fine. (And… read more

posted 7 days ago
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Anxiety and insomnia

Anxiety and insomnia

I have had insomnia for a few months and recently had shortness of breath with little exertion. I had a bad episode of aniexty last week and am now being treated for that along with my RA. Has anyone else suffered from these?

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A myRAteam Member said:

Brenda Pyle, would it be possible to get a biologic drug for you RA? They work so much better than the ones you are on. I got my whole life back. Every… read more

posted 6 days ago
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Good things to tell family & friends when you just can't....

Good things to tell family & friends when you just can't....

Even after having this disease 17+ years I can't find words for people. Maybe I'm tired of saying the same things over and over like a broken record. Like most everyone on here, I'm in pain 24/7. It NEVER goes away or stops. The only thing that may change is the degree of pain, where it is at and movement. I tell people constantly I dont feel well and have to cancel. I know people are sick of hearing I NEVER feel well or I am not making it… read more

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A myRAteam Member said:

@A myRAteam Member, thank you for doing that. I am nervous to order anything from overseas these days as our postal service has all but collapsed due to… read more

posted 5 months ago
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Does anyone have wheezing either as a RX side effect or along with RA symptoms.

Does anyone have wheezing either as a RX side effect or along with RA symptoms.

I had asthma as a child and have had problems only when sick with bronchitis/pneumonia. But since my RA diagnosis (or starting Methotrexate) I wheeze frequently. I find I am extremely sensitive to allergens and will wheeze with very little stimuli. I go to the allergy/asthma specialist next week, but I feel like this is not Asthma. My instinct is that it related to the RA or a medication side effect.

Thanks in advance for your… read more

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A myRAteam Member said:

I took two shots of methotrexate and got instant pneumonia both times. I have been on biologics, Enbrel and now Humira , without methotrexate for 5… read more

posted 5 months ago
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Does anyone find methotrexate to work really well?

Does anyone find methotrexate to work really well?

I keep hearing people talk about how intolerable @methotrexate is. I am curious to hear from people who find it to be helping. I started it 3 weeks ago and I can't believe how amazing I feel. Its like someone oiled my joints and told my muscles to behave! I wonder if it's something specific to my condition. I'm sero negative poly inflammatory arthritis. Essentially that just means I have Ankylosing spondylitis symptoms and RA. Virtually every joint is involved… read more

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A myRAteam Member said:

Methotrexate worked ok for me for about a year then I started having problems with my liver enzymes. And my hair fell out. And stated having pain in… read more

posted 12 days ago
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shaking hands

shaking hands

I am curious what fellow RA friends do when someone puts out there hand to shake it. I squirm when this happens as some people really squeeze and it hurts but I hate being rude.

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A myRAteam Member said:

I say hi with wave or hug

posted 6 months ago
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