Rheumatoid Arthritis

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Is my fatigue normal?

Is my fatigue normal?

Hi all! I am 22 and I've had RA for a year. I must say- it hasn't disrupted my life too much until my last rheum visit a month ago. My inflammation markers were down but the arthritis has traveled to my hips, so my rheum wanted to up my mtx dose and also add another DMARD. I tried sulfasalazine but got so sick on it. After 10 days, I stopped it, but it feels like my body has been in such a dip since then. I am suffering from debilitating fatigue- I can sleep for 8 hours and then be awake for… read more

A myRAteam Member said:

My doctor told me that my inflammation markers have not change since I started going. She said it has alot to do with my weight!! So I must lose some… read more

posted 16 days ago

Methotrexate- how long before you feel bad side effects after taking your dose?

Methotrexate- how long before you feel bad side effects after taking your dose?

How long after you take mtx do you start to feel negative side effects? I took my first dose on Friday night (it's now Tuesday) and I have felt terrible all day. I felt almost normal the day after taking it, except for a headache and my lips were a little puffy. All day today I've been super tired and feel like I might pass out.

A myRAteam Member said:

Initially I felt crappy for about 2 days, sometimes more. When I took the pills it was worse and lasted longer. Injections cause me less symptoms. I… read more

posted 10 months ago

Plaquenil v's methotrexate??

Plaquenil v's methotrexate??

Hi all could I please get some advice about Plaquenil? My rheumy as suggested this new med since I am doing quite well since coming off methotrexate. (Dr was not happy about this, but I stuck to my guns that the side effects far outweighed the med) what can I expect from Plaquenil?! Any side effects? I had all of the side effects from mtx in particular hair loss :( I am scared to take anything anymore after an awful experience with mtx!! Any advice welcome :) thanks in advance :)

A myRAteam Member said:

I’ve need on Plaquenil for 15 years. No big side effects. You have to see an eye Dr. every six months. You can develop Plaquenil toxicity in your eyes… read more

posted 3 months ago

Shaking hands

Shaking hands

I am curious what fellow RA friends do when someone puts out there hand to shake it. I squirm when this happens as some people really squeeze and it hurts but I hate being rude.

A myRAteam Member said:

I say hi with wave or hug

posted 9 months ago

Exhausted from the heat

Exhausted from the heat

Hi all,
I looked in the question and answer part and see a lot of us have problems with the heat. On Tuesday I ran errands for my work. It was 107 degrees, by the time I got back I was sweating so bad and so hot. Well yesterday I did nothing and slept on and off. Felt like I had no energy. I slept last night on and of, but that is the normal. Today i still feel drained and totally exhausted. Since this happened on Tuesday and today is Thursday. Is this normal to take a couple of days to… read more

A myRAteam Member said:

I know. I hate the auto correct also. Hugs and prayers to you my friend.

posted over 1 year ago

What has RA stolen from you?

What has RA stolen from you?

1. My neck first and foremost. I believe I developed RA when I was 27, because my neck would swell at the base of C7. Doctors have told me that's not from RA because RA only affects the top 2 vertebrae of the neck. I disagree!

2. Hands and wrists- always dropping stuff, can't open anything

3. RA is an energy vampire. I feel like it has sucked the life out of me. The very active spunky person I once was has been replaced with a chronically fatigued depressed one.

4. Mental clarity is… read more

A myRAteam Member said:

Can I add you to my team?

posted 6 days ago

Why

Why

Why is there still no sign of a cure for RA. ..is anyone even trying to find a cure? ????????

A myRAteam Member said:

Sending healing prayers.

posted over 3 years ago

Has anyone had severe pain to touch in the first joint of big toe?

Has anyone had severe pain to touch in the first joint of big toe?

My big toe is not red or hot to touch. Its alittle painful with walking but severe pain is when it touches anything. Sleeping at night i cant let sheet or blanket touch the joint esp the inner side. Been told by ortho i need toe fused because of deformity but its been mainly the larger joint. This joint pain is new.

A myRAteam Member said:

Me to

posted 3 months ago

Knees?

Knees?

Hi, folks:

Has anyone had swollen, debilitating knees that actually did ultimately respond to any of the meds, and resolved?

Or should I just be accepting that this will never change and it's just advancement of RA? I've tried several of the biologics so far, and my legs don't respond at all.

I never had OA, and have only been impacted by these swollen legs now since May or June of this past year.

I've also read that people have steroid shots to help, but that that's temporary and it usually returns.… read more

A myRAteam Member said:

:)

posted almost 4 years ago

Hair loss

Hair loss

Does anyone experience hair loss or thinning with RA or Fibromyalgia.... or with any of the medications? I'm just curious if I need to buy scarves

A myRAteam Member said:

Yes I are right! Lord help us all!!

posted 8 months ago
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