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A myRAteam Member asked a question 💭
Utah
December 12, 2025
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Answer Summary

Members shared deeply personal experiences about the difficult decision between taking steroids for pain relief and protecting bone health,... Read more

Members shared deeply personal experiences about the difficult decision between taking steroids for pain relief and protecting bone health, with many describing serious complications including avascular necrosis requiring hip replacements, severe reactions to bone-strengthening infusions like Reclast, and psychological side effects from steroids. Several members emphasized that pain control ultimately won out in their decision-making, choosing steroids alongside bone medications like Prolia, Fosamax, or Reclast and hoping for the best, while others refused steroids entirely after experiencing life-altering consequences. A recurring theme was the importance of individualized care and self-advocacy, with members urging the original poster to discuss osteoporosis treatment options with their rheumatologist, especially after witnessing loved ones suffer untreated bone loss and fractures.

A myRAteam Member

So far steroids are the only thing that I can function on. I don’t care about the side effects. I have to work, take care of my animals and get through the day. Whatever it takes.

December 17, 2025
A myRAteam Member

Thank you all for the responses! After seeing my mom go through so many compound fractures with osteoporosis, I don't want to go there. I have osteoporosis, but the bone density said it's mild so far. A little worse in my left hip. They do not have me on anything for the osteoporosis. Next time I go to the rheumatologist I will talk to him.

December 12, 2025
A myRAteam Member

I do have osteopenia and doing the prolia shot every 6 months.

December 13, 2025
A myRAteam Member

good idea check with your doctor

December 13, 2025
A myRAteam Member

Steroids are my last resort Rx, not only because of osteoporosis. I'm just really sensitive to them in a lot of ways. BUT... I'm lucky to be controlled by a biologic. If nothing else worked, I'd be right there with Greta2. I'd rather worry about osteoporosis than pain. Without pain I could do whatever I could to shore up my bones. Without pain I would exercise more. I'd be making bone broth every week and putting collagen in my coffee. I might even take that osteoporosis Rx. My PCP knows that I have an old vertical vibration plate. Last visit he told me to get it out and use it for my osteopenia. We're here for input, but that's a decision only you can make.

December 12, 2025

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