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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone taken Micophenolate (Cellcept)? If so have you had any side effects?

A myRAteam Member asked a question 💭
Utah

They have added with my other meds for my RA and other autoimmune issues that effects my skin.

September 6, 2025
 · 
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Answer Summary

Members shared their varied experiences with mycophenolate (Cellcept) and other autoimmune medications, with several describing difficult side... Read more

Members shared their varied experiences with mycophenolate (Cellcept) and other autoimmune medications, with several describing difficult side effects from drugs like methotrexate (mouth sores, hair loss, severe migraines) and the challenging process of finding treatments that work without causing new problems. Several members offered encouragement about hydroxychloroquine (Plaquenil), noting it helped slow RA progression despite side effects like fatigue, hair thinning, and in one case eye changes that required stopping the medication. A recurring theme was the exhausting trial-and-error of managing multiple autoimmune conditions, the tension between enduring pain versus accepting medication side effects, and the importance of staying in close contact with doctors rather than stopping treatments abruptly.

myRAteam

While the search results don't specifically discuss mycophenolate (CellCept), it's important to note that any new medication should be carefully monitored by your healthcare team. When starting any new medication for RA, it's essential to:

• Keep track of any side effects you experience
• Take medications as prescribed
• Show Full Answer

While the search results don't specifically discuss mycophenolate (CellCept), it's important to note that any new medication should be carefully monitored by your healthcare team. When starting any new medication for RA, it's essential to:

• Keep track of any side effects you experience
• Take medications as prescribed
• Inform your doctor about all other medications you're taking
• Get regular blood tests as recommended by your doctor
• Don't hesitate to contact your healthcare provider if you develop new symptoms Many myRAteam members have shared that when starting new medications, eating a snack or meal before taking the medicine can help reduce gastrointestinal side effects. If you experience any concerning side effects, your rheumatologist may be able to adjust your treatment plan or suggest ways to manage them. Remember that the benefits of treating RA often outweigh the potential risks of side effects.

September 6, 2025
A myRAteam Member

No, I have not been offered this medication. It sounds like methotrexate which I did take for 4 months. I had sores in my mouth, throat and nose. Lost 75 percent of my hair, mosquito bites needed antibiotics to get rid of, fatigue, brain fog, weight loss which I did not mind but severe vomiting which I did mind. I am now on Benlysta which, which at the moment has been better. Start once a week injections tomorrow. Good luck with the cellcept.

September 7, 2025
A myRAteam Member

When I was on hydroxycloriquine I didn't have hardly any side effects. But it did thin my hair. The Rheumatologist told me it saved me from the RA progressing fast. The only reason I went off of it because the eye doctor seen a slight thinning on the back lining of my eye. Not macular degeneration. The rheumatologist didn't want to take me off, but eye problems are a big deal in my family and I'm not changing anything.
Fist day of the cellcept and I was a little off but not too bad. I'm still on the Teyenne too.

September 13, 2025
A myRAteam Member

No I never had any need to take this medication (micophenopate

September 10, 2025
A myRAteam Member

KarenW, I get that wanting to see if you can weather the pain. I tried that and ever got really bad. It took me another 3 or 4 months to recover from stopping the biologic and my immunoglobulin. It wasn't good. I will tell you, I was on hydroxycloriquine from 2018 until about 6 months ago. It helped to keep the Damage from RA aat bay. I had to stop it because it started to slightly change my eyes lining. Please talk to your doc before you stop the meds.

September 7, 2025

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