I will get through. He said my joints aren't swollen so as long as the sores aren't all the time it will be okay. Tongue thing went away now I have a canker sore way up above my gum. I very seldom ever get them. I will take the joints pain free from RA over the mouth sores. 🤷‍♀️. I still have OA pain and nerve damage pain, but hey 1 down 4 to go!!!

I go to see my rheumatologist on Thursday. I will ask. He wants to put me on cellcept. I don't want to take that but I will ask about folic acid. My skin has also changed with the Teyenne so we'll see
Thank you all for responding. ❤️😊

Good morning. Methotrexate causes mouth sores if you do not take folic acid with it. The folic acid prevented that and stopped mt hair from falling out. I was driving home from my first MTX injection and huge handfuls of hair came out. That stopped once I began taking the folic acid.

I took the folic acid daily. It seemed to work better that way. My RA still benefitted from the MTX.

Hi! Methotrexate caused severe mouth sores. The worst were inside my lower lip which would crack open and bleed. Of course no one tells you that blood is dripping from your mouth. The sores covered my tongue and throat. I also had frequent nose bleeds. The pain was awful. After 3 months I told my rheumatologist I cannot do it any more. I also had nausea, vomiting and brain fog. It’s been about 4 weeks since my last dose and I can eat now as vomiting has stopped and the sores are almost gone. The brain fog as well as the fatigue are better. Starting Benlysta next week.

Hi Ellen,
I'm sorry you're had a terrible experience with methotrexate. I've been on it for 6 mos. along with folic acid. So far so good. But my rheumatologist also has me on prednisone, 15 mg daily. That's one I wish she'd take me off. Everytime she lowers the dosage, the RA pain, fatigue and weakness returns. So she ups the dosage.
I'm also on Duloxetine for neuropathy, which doesn't do anything for me. The neurologist refuses to take me off it and I understand that's another one to be weaned off. He is also in agreement with the prednisone prescription 😑. The neuropathy is the one kicking my behind. But I try to take one day at a time and I have a wonderful husband who is a wonderful support system.
Stay strong and keep the faith. I've added you to my team 😊.