I would love to have my husband have access to a group like this or articles so he can better understand this disease and or the journey?? Any ideas?
Thanks y'all
Thank you for your response. For me sometimes it would be easier to have something he can relate too as a spouse instead of me or a Dr just telling him. This disease is overwhelming for me at times so to have any resources for him I feel would help him have a "different " avenue to help understand..❤️
That's not a silly question at all! Many members have found success bringing their spouses to doctor's appointments so the rheumatologist can explain things directly. One effective approach is having your healthcare provider help explain the real impact of RA symptoms to help build understanding.
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Warriors,
Just a quick update. I did get the opportunity to bring Deb's idea to Lisa, just yesterday. Lisa loved the idea and will be reaching out to Deb today.
Suggestions for info that would help your loved ones understand RA better are welcome!
Thanks to all of you.
Dinah
Same my husband says he understands but he doesn’t he is very supportive but definitely struggles and feels helpless he has been to my pain doctor which helped but not my rheumatologist yet his work schedule isn’t very flexible at all but I’m hoping one day he can take a day off and talk to the rheumatologist as well so he can tell her how much pain I’m in and what experiences as well at home seeing me like this breaks his heart. Even my daughter who’s only 13 only knows her mom as being sick all of the time is just sad because I can’t explain it to her
@A myRAteam Member
Dear Friend,
You are not in any kind of trouble, to the contrary!
I got a chance to present your question to headquarters and Lisa loved the idea and will be reaching out to you today. Lisa is a real sweet and compassionate leader. You are in a safe space here, no worries!
Love you and your post!!!!
Dinah