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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 19, 2022
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Members overwhelmingly connected over the struggle with fatigue from rheumatoid arthritis, sharing that the exhaustion can be just as... Read more

Members overwhelmingly connected over the struggle with fatigue from rheumatoid arthritis, sharing that the exhaustion can be just as debilitating as the pain itself and often forces difficult choices about work, social commitments, and daily activities. Many community members described practical strategies that have helped, including daily walking or gentle movement, taking B vitamins (especially B12, B6, and B-complex), vitamin D, folic acid, and iron supplements, as well as finding a motivating activity or companion (like a pet) to stay moving even when it feels impossible. A recurring theme was the emotional toll of an invisible illness, the guilt of canceled plans and unreliability, the loss of identity when careers end early, and the daily mental battle to keep fighting and find joy in what you can still do rather than mourning what the disease has taken away.

A myRAteam Member

Fatigue of RA literally steals your life. I was also very active until this disease came along. Now it is a fight to put one foot in front of the other but you just have to keep plugging away and do what you can.It is difficult when you wake up just as tired as you were when you went to bed.Good luck to all as we are in this fight together.

August 26, 2024
A myRAteam Member

Yes. It’s hard to explain to anyone who doesn’t understand. You know you want to do things but you just can’t muster up the energy to do it and I find when I do try to do anything I can’t seem to focus to get it finished. Yesterday I just felt drained of energy all day. Ended up going to bed in the late afternoon. Just couldn’t get it together at all. I know what you’re experiencing.

May 20, 2023
A myRAteam Member

All the time...bur I still get up and go

August 30, 2023
A myRAteam Member

Yes its so frustrating never know when the Fatigue is going to hit you, i hate it, my dr did put me on Folic Acid seems to help.

May 17, 2023
A myRAteam Member

I have RA since 2010 and my Vectra score was at 95% which is high as the disease can go . I have been at death's door. I still work full time and try to pretend that I feel well. It is very difficult for people to understand this disease because you look okay from the outside. My specialist prescribe Infusions every 4 month with Truxima. It has definitely helped my pain and mobility issues, but the fatigue is still there. I force myself to get up a couple of hours early to lay in a heating blanket before I get in the shower, just so I can feel like working. For me I think you have to use a lot of mind over matter with this disease. Rheumatoid limits everything in your life to a certain degree, but you have to stay positive and fight it mentally with everything you have. If I feel like I need to rest, instead I will take a walk or do stretching exercise. This helps your mental stability and your pain and when I need to rest, I do so on a Sunday to power up for the upcoming week. I guess what I am saying is stay strong and fight like hell to live your life to the best of your ability. DON'T GIVE UP.

May 16, 2023

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