My mantra after 37 years with ra is: TRUST YOUR DOC, TRY THE MEDS. If you don't, you won't find the one that helps you get your life back.

Jayne, I just saw your first comment.
It is important to tell your Dr everything that's going on, but I've learned the hard way that some Drs don't necessarily have your best interests at heart. It's important to research the meds you're prescribed and talk to your Dr about anything that doesn't sound right. Make sure you're advocating for yourself! Speak up and don't let your treatment become lax. The medical field is changing and not necessarily for the better.
Blessed Be

I've been on low dose prednisone for the 32 yrs I've had RA. My body won't allow me to go off it. It's become reliant on the prednisone. You can stay on it as long as your dose is 5mg or less. I take 4mg. It does cause bone loss so take a calcium supplement. I also have adrenal fatigue, which the prednisone caused because it basically takes over your adrenal glands.
If you ever start feeling fatigued, more than usual while on it, talk to your Dr.

I have been on prednisone for years and years. The secret is low dose. Talk with your doc.

You shouldn't have to start over taking drugs that have failed you before. A second opinion might be wise too. Everyone of us has to try new drugs to see which one works for us. I wish there was one-size-fits-all RX fix. It's good that you are concerned abt long time steroidal use. From what I understand, it isn't a good idea for long term use. Don't just stop them. You have to wean off under a doctors advice and care. Whatever they recommend for you to try next- I wish you good luck and success. I hate side effects and extra worry/misery too. I just want my MOJO and energy back. Pain-free would be so nice too.