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How Long Can You Stay On Prednisone? I Have Been On It 15 Months While Trying 4 Other Medications That Have Not Worked

How Long Can You Stay On Prednisone? I Have Been On It 15 Months While Trying 4 Other Medications That Have Not Worked

I was on Hydroxychloroquine, then methotrexate, then leflunomide and finally sulfasalazine. The first two did not help at all and I had uncomfortable side effects. The last two I had very painful side effects. My doctor said there isn't anything left to try......I said what about biologics? She said Humira or Enbrel. Research them and decide which one. I'm not sure I even want to try them after the last two meds I took. Prednisone seems to help but I am concerned about staying on it for so… read more

posted 14 days ago
A myRAteam Member said:

My mantra after 37 years with ra is: TRUST YOUR DOC, TRY THE MEDS. If you don't, you won't find the one that helps you get your life back.

posted 12 days ago
A myRAteam Member said:

Jayne, I just saw your first comment.
It is important to tell your Dr everything that's going on, but I've learned the hard way that some Drs don't necessarily have your best interests at heart. It's important to research the meds you're prescribed and talk to your Dr about anything that doesn't sound right. Make sure you're advocating for yourself! Speak up and don't let your treatment become lax. The medical field is changing and not necessarily for the better.
Blessed Be

posted 7 days ago
A myRAteam Member said:

I've been on low dose prednisone for the 32 yrs I've had RA. My body won't allow me to go off it. It's become reliant on the prednisone. You can stay on it as long as your dose is 5mg or less. I take 4mg. It does cause bone loss so take a calcium supplement. I also have adrenal fatigue, which the prednisone caused because it basically takes over your adrenal glands.
If you ever start feeling fatigued, more than usual while on it, talk to your Dr.

posted 12 days ago
A myRAteam Member said:

I have been on prednisone for years and years. The secret is low dose. Talk with your doc.

posted 12 days ago
A myRAteam Member said:

These RA specialists have dealt with numerous sceptical and worried patients. They get to know each patient and how they react to each med, consider test results, mark your progress and other symptoms. We patients have to keep track of our symptoms/ reactions and share everything with our doctors so they know which therapy might be safe for us. There is the step-system of therapies to consider also. We all are taken thru many of the same drugs with recommended time periods of efficacy to see which will give us results. I know ppl that just love their current RA med and are doing well for yrs now. But that same one didn't work out for me and other types made me sick. But here I am trying another one I don't trust and I dread injecting. Bacon and cookies are bad for me too but I sure love stuffing those in my face! So, I shoot up and try to believe in it bc I so want to save my body from the rot of RA and this continual pain and fatigue. It isnt your doctor friend, so much as fear or apprehension of the meds. My son-in-law takes humira- abt 3 yrs now. I took it- enbrel too- no side effects. I'm 130 lbs and wimpy.
If you have symptoms you can't tolerate- call your doctor ASAP and talk abt it before ceasing it. There may be a med or supplement to counter effect those negative symptoms. Try to consider contolling your RA as the main goal. None of us are thrilled with taking FDA approved MEDS. I personally hate swallowing any pill and abhor needles. But-- I WILL conquer my fears and take what my doctor tells me to bc he is way smarter than I am and I trust him to know what's best for me and help me through this. Trust your doctor to help you. We do seek out their professional opinion and care and our reaction to these drugs is impossible for anyone to predict. The next one could be THE ONE that works like magic.

posted 8 days ago
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