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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Is Fibromyalgia Diagnosed?

A myRAteam Member asked a question 💭
TX

I was diagnosed in January of 2021 with RA and I am currently taking Enbrel. My rheumatologist says all my blood work looks much better than a year ago but I still have a lot of pain and seems more like pain all over not just the joints. For those of you that have RA and Fibromyalgia, how was the Fibromyalgia diagnosed?

April 21, 2022
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A myRAteam Member

I also was diagnosed 1st with Fibro, then came what I called ghost pains. They were bad but no explanation when x-rayed.

April 23, 2022
A myRAteam Member

Night times are the worst for my shoulders, neck, and arms. Takes me forever to get comfortable enough to even close me eyes.

April 22, 2022
A myRAteam Member

You don't need abnormal or hi lab markers to indicate pain. The markers indicate active disease. The pain may be from previous damage. For example, my foot/ankle ortho says my xray shows "bone on bone" and I should not be able to walk, but I walk fine (with a little discomfort) . My cartliage is worn down, so the distal tibia is grinding on the talus (ankle ) bone, because there is no capsule anymore. Don't think your pain is less because your numbers are normal. I know you are in pain, and the pain makes you tired, and you want to sleep, but you can't. I wake up feeling like I've been run overed , like I have the flu. I totally get it. I'm sorry . Sending my comfort !

April 29, 2022
A myRAteam Member

I was diagnosed with fibromyalgia first then several years later with RA. Prior to the fibro diagnosis I was experiencing fatigue and what seemed like flue symptoms of all over aches. My primary sent me to a rheumatologist who did a physical exam. I had most of the “tender” points that were back then one of the main ways it was diagnosed. Based on my previous exams and blood work ruling out any other health issues, my rheumatologist said that I had fibromyalgia.

April 23, 2022
A myRAteam Member

Me too.... me too lol it's ridiculous.. I have to laugh to keep from crying how bad my shoulder hurts.. I understand what you're going through.

April 22, 2022

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