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What Things Do You Miss Being Able To Do

A myRAteam Member asked a question 💭
Queensland

Sometimes I see somebody do the simplest of things and I just think “oh, I wish I could still do that”

At the moment we are stock taking at work. I watch how the young staff members reach the bottom shelf by plonking themselves down on the floor, sitting cross legged and start counting. Me……..well firstly I can’t get down on the floor and even if I could I certainly couldn’t cross my legs (my knees won’t bend that much) and then somebody would need to haul me up again.

Another thing I miss is… read more

March 18, 2022
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Answer Summary

Members shared deeply personal reflections on the physical abilities they miss most due to rheumatoid arthritis, with common themes including... Read more

Members shared deeply personal reflections on the physical abilities they miss most due to rheumatoid arthritis, with common themes including the loss of simple movements like bending down, reaching overhead, fastening jewelry or bras, and walking or hiking without pain or assistance. Several members described missing specific activities that once brought them joy, such as hot yoga, beach cruising, dancing, gardening, leatherwork, and traveling, while others expressed grief over needing help with tasks they used to do independently and worrying about burdening friends or family. A recurring theme was the emotional weight of losing not just physical capabilities but also independence, energy, mental clarity from brain fog, and ultimately the sense of self they once had before illness.

A myRAteam Member

I miss the energy I used to have. I miss being able to do up my bra myself and not having to find my daughter to do it for me.
I miss being able to bend down,, I miss going for walks, I miss being active in my garden, I miss being confident to drive long distances, I miss my full head of hair, I miss my slimmer figure. The list is endless
Nothin to do with R A,
I miss my husband,
I miss my 2nd son,
I miss my sister and my brother,
I miss my parents.
THe bottom line is...I MISS MY OLD LIFE AND SELF😪

March 19, 2022
A myRAteam Member

I miss being able to hike for miles, going fishing and camping, doing leatherwork - heck doing all of the hobbies I had before I became ill, a clean house, driving before my hands/arms/back stopped working right, going dancing, being independent...

But, most of all I miss my mind. Brain fog is absolutely horrendous when it shows up. When my brain doesn't work I can't seem to do anything.

March 18, 2022
A myRAteam Member

I miss being able to close the clasps on my necklaces. Also reaching up to do my hair. I now have to wear a wig.. Blessings and hugs to all.
.

March 18, 2022
A myRAteam Member

I miss the reaching also. I miss not having to rely on others to do things for me. Just the simple things.

March 18, 2022
A myRAteam Member

I love the song hotel California, never related it to RA, until now 🤣

April 19, 2022

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