First rheum. said I had sero-negative RA. Current rheum. says it's "poly arthritis" because I have joint pain in ankles, toes, wrists, fingers, and tendonitis in both ankles. Started with mysterious pain in mid-foot area, then suddenly progressed 15 months ago to ankles, toes and hands. Tried NSAIDS, prednisone, hydroxychloroquine, Cymbalta and methotrexate. Bad reaction to methotrexate. Currently on meloxicam, Cymbalta and hydroxychloroquine but only getting minimal pain relief. I have… read more
My RA was also sero-negative
It delayed my diagnosis by several years. Then I was referred to a great rheumatologist. He told me it's not real common but it's definitely the real thing. I have it in hands wrists, fingers, ankles and feet. I'm much better now but alot of damage was done prior to the MRI which confirmed it. I take hydroxychloroquine, Kevzara injections, celebrex and gabapentin. Good luck and I hope you get the true diagnosis soon.
Oh, I meant the anti-inflammatory diet. My understanding is you must eliminate all sugar which is difficult and of course wine is full of sugars. Some people can't even eat fruit! It's a strict diet and hard to do but I believe it helps. Ginger and turmeric in a smoothie with berries and celery are great way to start your day. Vitamin D3 is a must for me. There are many books and info about this diet online. Also, movement if you can manage to do it. I sit at a desk all day and on the week-ends when I force myself to move everything starts to feel better. Last but not least I had markers for RA and my doc told me that did not mean I had it. He said many have markers and don't have RA and others have no markers and do have RA. This disease is so tricky and I had to let it all sink in. Be careful what you read because there is some very scary info out there and it does not mean it will happen to you. It's hard to be upbeat when you are depressed but remember alcohol is a depressant and will only make it worse.
I love love love wine but I know it's not good for me. I hope you find answers and can find a doctor who will guide you through this. The first thing my doc asked me was my level of pain on a scale of 1 to 10. Can you get a second opinion?
Have you tried changing your diet? I know that sounds vague but sometimes diet worsens symptoms. You may want to try an AIP diet, it takes a few weeks to kick in but so far I think it has helped me and I have read stories of it doing wonders for others. Your doctors won't go for it but you can ask.
Don't give up! My teeth are killing me today and I am thinking...what next!!?
One foot in front of the other.
Thank you, SallieBradford, for your response. Very helpful! Neither the first nor second rhum. asked what my pain was on a 1-10 scale. I told them, repeatedly, and my current rhum. says "pain is subjective". True, but not helpful. That's why I focus on my current functioning, which is very limited. I used to walk 3-4 miles a day or work out on an elliptical until the ankle pain suddenly started. Now I do seated chair yoga as often as I can. My husband keeps asking when I'm going to give up the gluten-free/dairy-free diet; I say 'never" because why would I want to risk an increase in my pain? I have to say I feel cheated that I don't feel any benefit from it now.
I initially started the anti-inflammatory diet to help with my allergies and noticed that coincidentally all the strange pains in my fingers went away, for two years. An integrative medicine doctor I saw said perhaps it delayed the onset of whatever auto-immune disorder I seem to have. Has anyone else had that experience?