I'm only asking this because, sometimes I feel like a burden to not only myself but others around me because of my condition. I sometimes feel like I'm the only one who feels like a burden, or just get frustruated at times because people just don't understand or get what it's like to live a life with a disease that has no cure. And so, can someone please tell me that I am not alone in this?
I just wish people would understand that sometimes I can't go outside because of my pain. Or that I… read more
You are NOT alone! I think I can safely say that we all feel like this at times.
My ex husband didn't care about me or my Ra and used to cause arguments eventually i found the courage to take my young children and leave I've never looked back the stress he caused made my Ra a lot worse now I've remarried to a wonderful man who understands about Ra and fully supports me keeps me stressed free and helps do everything i can't
Stay strong sending prayers and best wishes your way Pat ❤ xxxx
I know what you mean--I was so used to being active and now I feel like a lump--plus I can't predict when the worst times are going to be. I don't want my son to know how bad things really are, because we used to travel a lot before COVID and now I think I may have to give that up. I am glad I live alone and can relax when I feel like S$&t.
Certain days I feel very useless around the house, I am very blessed to have a wonderful husband and family that does help when I feel this way❤❤
I often feel like that i put a lot onto my husband but luckily for me when we met and married 18 years,ago i laid it all out on the line and he fully understands and supports me i don't have to tell him if im in pain he seems to know even if i say im OK its hard living with Ra at the best of times how can you explain pain that's not like anything else its not like a headache or toothache is it that others can relate to its always there even on good days so please don't feel bad if you have to ask for a little bit of help i have adopted the way i do a lot of things there are things that can help with locking the door or opening cans if you have a mobility shop in your area
Hope this has helped stay strong regardless Pat xxx
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