Connect with others who understand.

sign up log in
About myRAteam
Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been On Actemra?

Has Anyone Been On Actemra?

I spoke with my Rhumy yesterday and instead of starting me on Rituximab, he is going to start me on Actemra, he just first needs to get approval from our provincial health plan so I don't go broke. Has anyone been on this and what did you experience?

A myRAteam Member said:

I was on the infusions and as they had worked so well for me my Rheumy decided to not switch me to the injections. Certainly would have been more convenient than going to an infusion clinic. I found I felt a bit tired after them but nothing else. After almost 8 yrs I developed a reaction to them that triggered my asthma and would end up on steroids and antibiotics after each infusion and so I had to stop them. Sadly I have failed many TA treatments and am now on Xeljanz which isn’t giving me the same symptom relief that Actemra did. Good luck with Actemra, I hope it works as well for you as it did me. 😀

posted 6 months ago
A myRAteam Member said:

I was on Actemra from 2012-2020 and it worked very well for me. Unfortunately I had to stop it due to developing infusion reaction. My RA symptoms were well controlled with it.

posted 6 months ago
A myRAteam Member said:

Thanks for responding Dakota 2 and Wendy Cherveny. My Dr. wants me to self administer injections of Actemra and not be infused, I am really hoping I have a good reaction to it, it has been too long since I have been on anything effective for me.

posted 6 months ago
A myRAteam Member said:

I took 1 dose of Acterma and had severe itching all over my body that lasted for 2 weeks.

posted 6 months ago
Already a Member? Log in