Answer Summary

Members discussed their experiences with vision issues while taking hydroxychloroquine, with the most common side effect being dry eyes, which... Read more

Members discussed their experiences with vision issues while taking hydroxychloroquine, with the most common side effect being dry eyes, which several members described as uncomfortable, especially upon waking, though one found relief using Restasis eye drops. Nearly all members shared that their rheumatologists or ophthalmologists require regular eye exams, typically once or twice a year, to monitor for potential retinal damage, with most noting they have not experienced serious problems despite years of use. A recurring theme was that while retinal toxicity is a known risk, doctors generally consider it rare and most likely to occur only after at least ten years of use, making routine monitoring an important but manageable part of staying on the medication.