Hi my name is Paul I am 29 years old and have rheumatoid arthritis and i am going through a flare right now. I was diagnosed at the age of 13. I go with months at a time symptom and flare free I would forget what the symptoms are and now for the past 4 years I seem to get seasonal flares every October/November/December one of those theee months and I constantly think I am dying with each new flare symptoms get stronger and worse it makes you think that your ill. For the first time I am… read more
Stephanie, I totally understand your apprehension and fear of taking medications that you aren’t familiar with.
I had my first Simponi infusion this morning and I was really nervous about it. I never know how a drug will affect me.
But, I was fine afterwards, with no immediate side effects... except for being extremely sleepy for the rest of the day. I think it’s because I had to get up extra early to get to the infusion center.
The most important thing for you to know is your own body. You listen to it and make a little journal of how you feel so that you can tell your doctor.
I’m pretty sure, after 18 years of having RA, that stress is what causes much of my pain, anxiety and depression.
No matter how I try to think positive thoughts, it’s not easy dealing with not being my old active self.
You are so young to be dealing with illness. I am so sorry for young people who have this disease.
Just know that we are all here to answer questions and try to lift you up with our support and prayers.
I don't like taking medication either, and diet is really important in order to be as generally healthy as possible. The issue is by not treating your RA you're allowing it to course through your body and do damage. This isn't just creaky, swollen joints and some aches and pains. As the disease progresses you could be sustaining bone erosion (not reversible), joint deformity and loss of function and organ damage. I'm a year in and have spent much of that time off meds due to adverse reactions and I've got some liver damage and a brand spanking new heart condition. Please rethink RA treatment. You're so young, you have young kids. Please take care so you can enjoy them and be there for them long term.
I am not on medication and I don’t mean this in a negative way I don’t want to be unless I need to be I am willing to take natural actions first such as diet and lifestyle changes before medicine. I also had rheumatic fever at 12 but thank god I was put on antibiotics right away for years which protected me from further damage and the real negative effects of It was RA so I believe in trying to stay as natural as possible as long as possible that’s why I am very anxious because of being sick when I was younger took a toll on my emotional health. Today at 29 I have a full time job a 17 month old son and due with a daughter in January now I am just looking for help to get through these RA flares it’s messing with me mentally really strong
Definately take proper medication. If you just let it run like that it can seriously damage your joints and even other organs and blood vessels etc. If you start treatment early you really can stop the progression of your body getting irreversibly damagef by it. Up to you but the meds arent that bad compared to the disease. Hope you get better soon.
I don’t want to be on medications either I’m scared to take them. I’ve changed to eating anti inflammatory. Right now the RA has not yet effected my bones or joints I just have thickened synovial fluid. Idk if this is normal to be diagnosed
Off of. I’m so confused as to what to do about this, I’m only 30. I don’t want it to progress