RA Remission
Does anyone know if your RA goes in to remission whether or not the fatigue goes away? I really need some hope to hang onto. So tired of being tired. Thanks. 😊
@A myRAteam Member,
I am entering my 4th year of remission, on XeljanzXR. Here is what I know, remission varies person to person, just like RA itself. My personal experience is that it takes time, excercise and accepting that sometimes you just need a nap...lol I guess what I want you to know is that no odds are you will not feel like you did before RA, but you can get better at adjusting to life with RA.
I had been unable to get out of bed without help, couldn't walk without a walker, slept a lot and was exhausted easily. Now, I can get out of bed, do some housework, rest, do a little more, walk without my walker, unless I am going some distance, drive again, do excercises such as tai chi, modified chair sit ups, my simply fit board and play with our furbaby. There is still the occasional night that I can't sleep, but I will usually have a couple of naps the next day.
So, bottom line, yes it can get better. I think of how far I have come, the things I would still like to do, that are just out of reach. But, they are obtainable.
You are younger, hopfully your body is in better condition than mine was to start, just have patience. You are a Warrior!!!!
You will be dancing in no time!
Maki what dose is your vitamin D3. And you need to take K2 with MK4 and magnesium and fish oil to make it work. Also not the D3 from Walmart. Doctors don’t know and are not educated in the new dosing of D and new blood levels. Please read the books I have on my story for better info. It helps so many conditions. It has totally turned my life back to what I was before. Hang in there 🤗
If you get full remission the fatigue will get better, but as you fight this illness, the body need rest, just like fighting a cold or flu. Also some of our meds cause drowsiness. Once meds start working remission will come in stages. Some get a lot of relief, and some get very little. It depends on how much joint damage you have. I hope this helps. FIGHT EVERY DAY.
I went a good 2-3 years of feeling like I was in remission. I was on Enbrel at the time and had weaned myself off of prednisone. But I had a pretty big heart attack and Enbrel and congestive heart failure are not compatible so I am now on Orencia which to me does not work as well at pain management but has kept my RA mostly in check from causing bone loss and joint issues. Back on the prednisone for me to manage my daily pain. It's manageable as long as I stay clear of my triggers and exercise moderately.
I take a multivitamin, OsteoBiflex, Calcium, & searching for liquid vitamins that have better solubility for absorption.
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