That's awful. I'm so sorry to hear that hopefully a different steroid can kick it out for a little bit. Buy you some time. Any Steroid injections?

I’ve been on a high dose of prednisone for 4 years also .

* other steroid injection

I am on Rutuxan now since last year 2019 April. This medication is very, very strong to the point when I had my infusion back on January 2 I had an absess didn't think much of it. However, by January 6th I was in the hospital having that absess surgically removed as the Rutuxan caused massive growth in that little time because there was infection present within that absess. With the Rutuxin once it starts going into my body it causes weakness and pain in both of my legs. So much more I experience with this med however, I can't express it as my hands cannot type it due to all the pain I have.

I took methotrexate for over a year and only felt like crap and list my hair with it. Your doc could get a flare up under control w Prednisone possibly. It helps get rid of major pain quickly. But it's best to ask your doc. Haven't done any IV's hopefully I won't ever have to. Hang in there.