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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Seronegative RA? Were Your Doctors Able To Get Your RA Under Control?

Does Anyone Have Seronegative RA? Were Your Doctors Able To Get Your RA Under Control?

A myRAteam Member said:

My doctor just said “ you have arthritis in your neck and both hands

posted over 1 year ago
A myRAteam Member said:

I have had RA since I was 9. So technically I have JRA but I have been seronegative this whole time. For years I have been able to go for long bouts of remission on monotherapy first with methotrexate then with enbrel. In all honesty I think rather your negative or positive really doesn’t matter but that’s just my opinion to me I think it’s all just the same

posted over 1 year ago
A myRAteam Member said:

My primary did all the bloodwork and it was all normal.my sports med.dr.did xrays for osteoarthritis and there was no damage,so he sent me to a rheumatologist. I have hard lumps in both of my hand knuckles.i was diagnosed with fibro.over 5yrs ago because of the tightness in my shoulder blades,back and neck.i also have alot of stiffness if I relax to long and when I wake up in the morning.it all started with severe vomitting migraines. I've had trigger point injections several times but my muscles got tighter.im on lyrica,tramadol,and muscle relaxer.i am also a cancer survivor of 28yrs.lost my life a couple times and because they took my spleen my platelets are higher than normal,so whenever I hurt my ankles or legs,I get blood clots.have to go on blood thinners when that happens and before any surgeries.my rheumatologist appointment is this tues.and I hope she dies more investigating because my dad died of a autoimmune but they didn't find it until he got kidney disease.

posted over 1 year ago
A myRAteam Member said:

I have Seronegative RA also. My hands are badly affected, as well as several other joints. I had my left knee replaced last July. It was a good decision, and i am happy with my new knee. I have a really bad back from a compression fracture i suffered after falling down a flight of stairs, in 1987. I had the disc removed at the S1/L5 level years later, and did really well for 10 years. I now have severe spinal stenosis, and have lost the feeling in my left leg. I use crutches to ealk because the nerve damage to the leg causes it to give way frequently and i fall. I manage the back pain with several meds and Radiofrquency denervation a couple of times a year. At this point the only permanent fix is a spinal fusion which they will not do because i smoke. I dont know that i would want to have it done, as i have heard many horror stories! Recently i have been having aweful flares, and i am constantly fatiqued. I see my Doc next month, which cant come soon enough! Sorry for the long post!

posted over 1 year ago
A myRAteam Member said:

I can relate. Many years ago when I was married, we moved into a new house. We were lucky enough to be able to make some improvements and changes to make things more our style and make things easier for me. One thing we did was put lever handles on ALL the doors. On some I bought colored lever handles, others just silver or fake gold. We had them on all but the front door because I rarely went out that one. Not only was it MUCH easier for me, it was fun because in some rooms I used bold primary colors.

We did these ourselves. The store from which we bought them no longer exists, but I am sure there are other DIY places where you can buy fun lever door handles. Also, Home Depot carries them, I'm just not sure if they come in fun colors.

posted over 1 year ago
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