I’m 31 father of 4 I work all day my wife works all night. I’m to the point that my long flare ups are taking away from my day to say life at work and home. I work a very physical job and I used my hands all day. Just wondering what everyone else’s opinion and how you manage to live your life with flare ups that come out of no where and last for an undetermined amount of time.
I knew almost 2 years ago when I quit my job (my husband thought I was let go) I was working at a call center & I would have anxiety attacks before I even got to work. I worked there for 5 months & on my very last day I knew I would never work again. I told him they fired me because I knew he was going to be mad but the next day I told him I quit & he was very mad. He understands now, Thsnk goodness. I tried babysitting but I can’t even do that anymore. Living with 3 autoimmune diseases plus having bad anxiety, ptsd & depression isn’t a good mix at all.
To echo what Roy said, you have to get a team of good doctors that LISTEN to you. Your primary care doctor is critical. Make all of the specialists send copies of everting to your PCP. Do everthing in your power to get them to talk to each other. As for work, nobody can decide but you. However, as I take it, you are in the "skilled trades" have you thought about becoming a teacher rather than a doer?
Roy you will know when it is time. I changed jobs to help me with mine, just so I could stay somewhat active. When I needed a cane to help me with my balance that is when I knew it was time for disability. I still work a couple of hours a week to get me out of the house. Good luck
Hows it going Brad, I lost alot of time last year from work. IT was very difficult. You have to be strong and stay on top of your doctors. Get in with the right doctor who understands your disease (I was not for over year and struggled, having knees drained almost weekly). I just stuck threw it until the doctors were able to get on a good regime, now my flare ups happen maybe less than once a month and with prednisone i can get them to go away quickly. It was def a learning curve for me, challenged me both mentally and physically. Good Luck