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Real members of myRAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

HOW LONG DID IT TAKE BEFORE YOU FOUND THE CORRECT RA DRUGS TO COMBAT YOUR FLARES And Not Need Prednisone?

A myRAteam Member asked a question πŸ’­
Troy, NY

I have been in endless wrist, hand and now shoulder flares for the past nine months. diagnosed in late 2017 and put on methotrexate and enbrel. Both stopped working late December 2018. Then the massive painful flares began. Worse than when first diagnosed
Tried humira and xelzanze, did not work. Now dr brings out the big guns, IV infusion acterma. After 3 months STILL not working and still need to take 20mg of prednisone to even be able to get out of the bed to get to work. And… read more

August 22, 2019
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A myRAteam Member

No they are at spa locations. Look for discount coupons on "groupon" site

August 31, 2019
A myRAteam Member

I'm not sure that there is a long time correct drug. My first rheumy said to me after developing a drug regimen, "This should hold you until you fall off the rails again." I recently had to stop taking plaquenil after my blood tests took a dive. It started when my rheumy added leflunomide but required going off plaquenil to stop the downward slide. I had been taking plaquenil for about 20 years with no problem. I know what you mean about prednisone. It makes my pain go away when I'm on it but I don't like the way I look either and it causes stomach problems so I try to avoid it. My drug regimen now is actemra infusions once a month, 1 vicodin a day, and 1 tylonol. I also spread asper cream with lidocain lotion on my back, apply salon pas to my lower back and use prescription diclofenac cream on my hands and other trouble spots. I've heard good things about CBD old but haven't been willing to try it myself. I have friends who've had good results with it but I don't believe that it's legal in every state.

August 23, 2019
A myRAteam Member

oh..I am so sorry u are in such pain.
Litterly sucks.
I was on several methotrexate...enbrel..xljanz...
Now currently on weekly injections 125 mg. I do myself along with sulfasalazine 1000mg daily.
I started feeling better overall with this combination.
Plus I changed my diet...a lot and exercising more. The exercise has increased my strength.
Dont give up...keep searching .πŸ™πŸ’™

August 22, 2019
A myRAteam Member

I take arava, plaquenil, D3, B12 & potassium chlor, as well as CBD. As a 2x cancer survivor my Dr prefers to stay with basics. I do have flares and fatigue but greatly reduced. I choose to avoid pain meds and losing weight has helped. Everyone is different, do your research and work with your Dr to find a plan just for you. It is a work in process... hugs!

August 22, 2019
A myRAteam Member

Anne I am so sorry you are having such a difficult time with your RA. Everyone is different when it comes to what works especially when dealing with a flare up. What I noticed while in the middle of a flare up was that the only relief I had was in a warm Epsom salt bath ( I spent a lot of time in the bath 😊). The next thing is sleep, I had the Dr give something to make me sleep deeply, this helps tremendously!! I hope this helps you and I’m praying that your flare up eases up. God bless.

August 22, 2019

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