I have been in endless wrist, hand and now shoulder flares for the past nine months. diagnosed in late 2017 and put on methotrexate and enbrel. Both stopped working late December 2018. Then the massive painful flares began. Worse than when first diagnosed.
Tried humira and xelzanze, did not work. Now dr brings out the big guns, IV infusion acterma. After 3 months STILL not working and still need to take 20mg… read more
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So sorry for you it’s taking so long (2 yrs or so and counting) to find an RA med to work for you.
Impossible to say which drug that you have not tried might work, but there are many that you have not mentioned that have helped others, so maybe there’s still great hope.
There are 3 other DMARDS other than Methotrexate . And there are many more biologics still to try. Hopefully u have a rheumatologist who will work his tail off to finally get you one or a combo of ones that help your RA, preferably with no needed extra prednisone. Best wishes.
PS Perhaps some of the members on here who have struggled with RA for many many years (I’ve read many stories here of folks that were dx over 25 yrs ago) have much greater insight on how long it may take one to find an acceptable solution. Hopefully, your relief is just around the corner.
I'm not sure that there is a long time correct drug. My first rheumy said to me after developing a drug regimen, "This should hold you until you fall off the rails again." I recently had to stop taking plaquenil after my blood tests took a dive. It started when my rheumy added leflunomide but required going off plaquenil to stop the downward slide. I had been taking plaquenil for about 20 years with no problem. I know what you mean about prednisone. It makes my pain go away when I'm on it but I don't like the way I look either and it causes stomach problems so I try to avoid it. My drug regimen now is actemra infusions once a month, 1 vicodin a day, and 1 tylonol. I also spread asper cream with lidocain lotion on my back, apply salon pas to my lower back and use prescription diclofenac cream on my hands and other trouble spots. I've heard good things about CBD old but haven't been willing to try it myself. I have friends who've had good results with it but I don't believe that it's legal in every state.
oh..I am so sorry u are in such pain.
I was on several methotrexate...enbrel..xljanz...
Now currently on weekly injections 125 mg. I do myself along with sulfasalazine 1000mg daily.
I started feeling better overall with this combination.
Plus I changed my diet...a lot and exercising more. The exercise has increased my strength.
Dont give up...keep searching .🙏💙
I take arava, plaquenil, D3, B12 & potassium chlor, as well as CBD. As a 2x cancer survivor my Dr prefers to stay with basics. I do have flares and fatigue but greatly reduced. I choose to avoid pain meds and losing weight has helped. Everyone is different, do your research and work with your Dr to find a plan just for you. It is a work in process... hugs!