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Has Anyone Been On Actemra?

Has Anyone Been On Actemra?

Rheumy just started me on Actemra. Xeljanz stopped working 😥
Hard to get used to injections all over again but atleast it's not iv infusions.

A myRAteam Member said:

@A myRAteam Member.
I'm not on either anymore. taking Remicade infusions that seem to b working quite well. Dont think I ended up trying actemra. Or atleast it did nothing for me

posted 5 months ago
A myRAteam Member said:

Hey! I was on Actemra for a few years and it worked wonders for me -- managed my symptoms seamlessly without adding any side effects (quite unusual with these drugs!). The only downside is that it is quite potent, so if you drink alcohol, I'd advise that you cut back significantly. I ultimately was taken off of it because my liver levels were "borderline" -- however, I had just been living in Scotland and had developed quite a taste for whisky, so I could've had elevated liver levels anyway. Hope that helps - best of luck to you! Oh, and you'll get used to the injections...so much better than the IV!

posted over 2 years ago
A myRAteam Member said:

Not me

posted over 2 years ago
A myRAteam Member said:

Sc, are you still taking xeljanz? If so has it gotten any better for you? I had to stop actemra over a year ago because I started having bad reactions to it after almost 8 years. It worked so well for me… they switched me to Rinvoq but that did nothing except make my hair fall out. Switched over to xeljanz and it’s working somewhat but after 7 mos I’m still not as good as I was with Actemra…I’m so stiff and sore in the morning I feel like I’m 90! Which I’m not… LOL.

posted 5 months ago
A myRAteam Member said:

I loved actemra. When it quit working last spring went to xeljanz which I dont like nearly as well

posted over 1 year ago
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