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Has Anyone In The UK/NI Recently Had Problems Getting The Zentiva Brand Of Hydroxychloroquine

Has Anyone In The UK/NI Recently Had Problems Getting The Zentiva Brand Of Hydroxychloroquine

My chemist has told me that Zentiva have stopped making this product but I can't find any evidence of this. The other generics make me very sick and I'm at my wits end.

A myRAteam Member said:

Wow. The equipment is the same as required to diagnose and monitor glaucoma, as well as stroke, pituitary disease, brain tumours or other neurological deficits. Would think any large ophthalmology center has to have the equipment cause glaucoma is so common in the aging population. It is an expensive piece of equipment though (5 figures) but nothing compared to an MRI or Catscan machine (6 figures).
But again, the UK health system has very different rules than in the US. Sorry u have to go off a drug that u say is working well for you. Any other RA med choice entails greater general risks than Plaquenil , my rheumatologist told me.

posted 11 months ago
A myRAteam Member said:

In Liverpool all patients taking Hydroxychloroquine have been told to stop. I was on it for 17 years. The reason is the damage it is causing to eyes and the equipment required to have the necessary eye testing is just too expensive for hospitals to buy. I understand if this equipment isn't used in your local Health Authority the advice is not to take it and the Health Authority to advise stopping it also. As far as I am aware it is a direction from Nice Guidelines which are like targets to Health Authorities. This could be why companies are not producing it anymore?

posted 11 months ago
A myRAteam Member said:

Methotrexate, sulfasalazine and Plaquenil are 3 of the four DMARDS. All have somewhat similar modes of action....none inherently “better” than another....just some patients respond better to some of them vs others. Impossible to determine until a patient tries.
Plaquenil is generally understood to have the least bad side effects profile...unfortunate no longer available for u. If I had a choice of all four DMARDS to try, I personally would pick Plaquenil, as it’s safest for most patients . But of course, always follow the advice of your own doctor.

edited, originally posted 10 months ago
A myRAteam Member said:

They put me on Methotrexate and Sulfasalazine

posted 10 months ago
A myRAteam Member said:

Thank you SamH, I think you could be right.

posted 11 months ago
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